Yes, mine has been this high since Covid, early 2020 or before. I had mono as a teenager as well. When I began to feel debilitated with fatigue and had a rash all over my back I went to several doctors, primary care, rheumatologist, pulmonologist, neurologist… No one could figure out what was wrong with me until I saw an integrative doctor after I started passing out at work in June 2021. I had 3 ER visits in a year with chest pain as well. I have been diagnosed with long-haul Covid, reactivated EBV, ME/CFS, Fibromyalgia, dysautonomia, POTS. I have been really sick since April 2020. My primary care still has the nerve to say to me that it’s depression. It’s awful the gaslighting that comes from doctors.
It’s so frustrating, I spend every day resting because I have no choice I’m so debilitated with fatigue. I have tachycardia when I stand for too long, and I’m dizzy more than I am not. If I happen to have what I call a ‘decent day’ I inevitably end up with post exertional malaise from basically doing nothing. Sometimes the PEM can last for a week sometimes it can last for a month. I currently take Vitamin C, D3, L lysine, Monolaurin and a really good Multivitamin from Pure Encapsulations. I am 58 years old, single and can no longer work. They don’t know if Covid itself triggered all of this or the vaccine. I have no friends left because every one is tired of taking me to doctors appointments and then they eventually just stop calling because I’m always sick. It’s a hard pill to swallow when people say things like “ Yes, well I’m tired too” and then they go out for the night or away for the weekend.
Interestingly , I feel like I had more better days last summer than I am currently. It’s so frustrating, isolating and sad. Everyone else is out living live.
I hear you all.
I can relate to your feelings. Reading your post made me realize a lot of things. I have the desire to do something and then I don't because I think about what's involved in getting ready. I've learned not to make plans. I too have run into people who don't understand and I remind myself that they really don't. Their frame of reference is they'll rest later or on the way etc but speaking for myself sometimes that doesn't work. In fact, sometimes after a rest, I need about a half hour to become functional. You mentioned the COVID vaccine and wondering if it caused a flare for you. It may have. I have a friend who has Lupus and she was vaccinated (COVID) and it put her in such a flare for months. Hope you're doing better.
@luv2lrn