Has anyone improved bone density without meds?

Posted by naomid @naomid, Mar 21, 2023

I have a very problematic dental history and will continue to need additional root canals and implants. I also have Sjogren's Syndrome and want to avoid any drugs that cause rheumatic symptoms. Other issues in my health history make all of the meds risky for me. That said, I work out almost daily, lift weights, maintain a healthy diet, take all the recommended supplements, and get most of my calcium nutritionally. My endocrinologist wants me to take an infusion/injectable drug. I dread the side-effects, yet I'm afraid of fracturing, which hasn't happened over the many years I have had osteoporosis. That said, my numbers are getting worse (-3.2 spine, -3.1 hip). I need to do something more than I've been doing, and am at a loss. I need hope and solutions I can be at peace with. Thanks for any comments or suggestions!

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@olderdiva12345

Thank you. I take 1200 mgs of Calcium and do not take Calcium Carbonate. The zinc is taken maybe once per week. The vitamin D intake is Zero. Vitamin C is in the form of pure, no pulp Orange juice once or twice per week. Four gummies of Magnesium per day and Metacumacil twice per day. A memory suppliment is taken once per day and Balance of Nature every day.

I feel fine and have had this regimine for over a year. Am I doing something wrong?

Many thanks,

Judith

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It would be a good idea to look closely at your supplements and see if there are duplicates of particular vitamins and minerals so you can get a better idea of exactly what you are consuming. Your first post mentioned calcium carbonate and vitamin D so some of your supplements may be duplicating others (or not). 21 supplements a day is quite a lot. A low-dose multi is probably okay for most people but in general, it's a good idea to focus on whole, nutrient rich foods and then supplement where your diet may fall short. For example, I cannot eat dairy so it's a bit more challenging to meet my calcium needs. I calculate my calcium on cronometer.com (free) and if I do not meet the daily need of 900-1200 mg, I take a small amount to supplement which generally amounts to about 300 mg a day at most.
It might be a good idea to run this by your provider or meet with a Registered Dietician to see if you are meeting your nutritional needs and/or if your supplements might be too much of a "good thing".

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I agree and just dispensed with another Calcium product which contains duplicates of other suppliments. I was taking waaaay too much. Many thanks for your concern, tetris.

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@olderdive12345 many of us were concerned about your calcium intake 🙂

You want 1000-3000 units of Vitamin D3 (I take 3,000 in the less sunny months- ask you doc or nutritionist) and you should also probably ask about taking Vitamin K.

I never mix calcium and magnesium- I separate them by at least two hours, as I was told by my doctor.

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@lashu

My sympathy for your suffering: what you describe for life long consequence is what my doctor predicted for me if I do not act. I hope you will be able to find an exit door to leave the suffering, to cure the source of your pain. You have given me much to reflect upon.

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@lashu on the positive side, Tymlos has made me so much stronger and the pain is a lot better too. I even walked 10 miles with my daughter- unthinkable before treatment.

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@olderdiva12345

I agree and just dispensed with another Calcium product which contains duplicates of other suppliments. I was taking waaaay too much. Many thanks for your concern, tetris.

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My daily diet is not healthy and I know that which is why I am taking supplements. I do talk with my provided every six months and will see him again in September. Thank you all for your concern.

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@tetris

@olderdiva12345: Personally, I think you are taking way too much calcium, which is 5200 mg daily based on one of your earlier posts.

The recommended daily amount of calcium is 1200 mg , and it's recommended a person should get as much of that through their diet (vs. supplements). It's not recommended to take more than 1200 mg daily, even if one has osteoporosis -- see the "Guidelines if you are taking calcium supplements for osteoporosis" link at https://www.hsph.harvard.edu/nutritionsource/calcium/,

I strongly urge you to review your supplements with your doctor or registered dietician. Taking too much of a vitamin and/or mineral may be dangerous, can cause health problems, and/or be a waste of money, In other words, more is not necessarily better.

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I agree and an disposing of another Calcium supplement...Thank you for your concern. I will be reviewing everything with my provider this coming September.

Judith

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@windyshores

@lashu on the positive side, Tymlos has made me so much stronger and the pain is a lot better too. I even walked 10 miles with my daughter- unthinkable before treatment.

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Wow. A lot to think about, thank you so much for your sharing experiences that mean a great deal.

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@teb

After Forteo, I went on HRT to maintain the gain. After reviewing the options carefully, I chose HRT as the most "natural" option; something that my body recognizes and knows what to do with. I was 63 at the time and within the 10 year window and chose the very lowest dose of transdermal to be as safe as I possibly could be. Attitudes towards using HRT are beginning to shift and for some individuals, it is a good option to help maintain bone. It's definitely not for everyone but I felt it was best for me. Because I have autoimmune issues, my doctor agreed to prescribe it. I have been mostly holding steady with some decent gain in my hip which I think is also due to my exercise regimen which includes walking 4 miles a day, pressing 20 lb weights, squats with weights, core, pilates, dance, exercise bands and nutrition along with the meds. (just a note...I did all of that exercise and good nutrition without the meds and failed miserably to improve bones so it's the combination that's working) It is darn hard work!! It's a constant in my mind and life but it's just what we have to do to manage this condition.
Thank you for your kind thoughts. Wishing you well. Keep us posted.

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Teb, Your story is very encouraging.
After my first injection of Prolia, I had severe leg pain when walking outside for exercise. I had to stop every 5 minutes while walking. This did get better after about two months. I'm very prone to side effects anyway and don't feel I should continue the Prolia, even though I feel pressured to by my MD. Two pharmacists I know very well told me that the leg pain is a red flag.
Do you recommend Forteo?
I am 69 with autoimmune disease, Rheumatoid Arthritis, and wonder if it should have been prescribed Prolia anyway.
How did you learn your exercise routine? Did you go to a physical therapist first?

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@donna33

Teb, Your story is very encouraging.
After my first injection of Prolia, I had severe leg pain when walking outside for exercise. I had to stop every 5 minutes while walking. This did get better after about two months. I'm very prone to side effects anyway and don't feel I should continue the Prolia, even though I feel pressured to by my MD. Two pharmacists I know very well told me that the leg pain is a red flag.
Do you recommend Forteo?
I am 69 with autoimmune disease, Rheumatoid Arthritis, and wonder if it should have been prescribed Prolia anyway.
How did you learn your exercise routine? Did you go to a physical therapist first?

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@donna33 Forteo and Tymlos are bone builders with an entirely different mechanism from anti-resorptives like Prolia. If you have not been on Prolia for long, a switch to a bone-builder might be effective. I have an autoimmune disease and my docs won't prescribe Prolia for me because it involves the immune system (Rankl) and because it is hard to get off of. It can also affect the effectiveness of bone builders if taken afterwards so check that with your doc.

I had excellent success with Tymlos. I managed to tolerate it by starting at a low dose (the pen has clicks) and ramping up.

If you cannot tolerate Prolia you now have a better chance of insurance covering Tymlos! Tymlos also has financial assistance.

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My question is how can you have dental implants if your bones are bad ? They told me you need very strong bones for dental implants . My endocrinologist told me I will be taking Prolia after Evenity
. You also can only take Forteo orTymlos for only a yr. Tops 18 months . High risk of bone cancer .

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