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Has anyone improved bone density without meds?
Osteoporosis & Bone Health | Last Active: Nov 25, 2023 | Replies (487)Comment receiving replies
Teb, Your story is very encouraging.
After my first injection of Prolia, I had severe leg pain when walking outside for exercise. I had to stop every 5 minutes while walking. This did get better after about two months. I'm very prone to side effects anyway and don't feel I should continue the Prolia, even though I feel pressured to by my MD. Two pharmacists I know very well told me that the leg pain is a red flag.
Do you recommend Forteo?
I am 69 with autoimmune disease, Rheumatoid Arthritis, and wonder if it should have been prescribed Prolia anyway.
How did you learn your exercise routine? Did you go to a physical therapist first?
Replies to "Teb, Your story is very encouraging. After my first injection of Prolia, I had severe leg..."
Prolia was described by my doctor as well and I refused to take it due to the side effects one of which you just described. Other side effects consisted on bone and joint pain and I don't need or want that and am trying to get my bone density lowered with vitamin supplilments. Good Luck.
I had no reactions to Forteo but of course, everyone is different. Tymlos works similarly and is something you could explore as well.
When first diagnosed with osteo, I asked my endocrinologist to put in an order for PT for me. I was lucky in that she knew of someone who was an expert in osteoporosis who then taught me what movements to avoid and how to modify others. Sherri Betz is an osteoporosis-trained practitioner as well as Margaret Melio. You can search their videos which will get you started on establishing an exercise practice.
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@donna33 Forteo and Tymlos are bone builders with an entirely different mechanism from anti-resorptives like Prolia. If you have not been on Prolia for long, a switch to a bone-builder might be effective. I have an autoimmune disease and my docs won't prescribe Prolia for me because it involves the immune system (Rankl) and because it is hard to get off of. It can also affect the effectiveness of bone builders if taken afterwards so check that with your doc.
I had excellent success with Tymlos. I managed to tolerate it by starting at a low dose (the pen has clicks) and ramping up.
If you cannot tolerate Prolia you now have a better chance of insurance covering Tymlos! Tymlos also has financial assistance.