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DiscussionStrange symptoms rapidly worsening -back pain, vibrating legs and body
Brain & Nervous System | Last Active: Sep 20, 2023 | Replies (33)Comment receiving replies
Replies to "Oh my god. Are you me lol? I have one of the exact same theories and..."
Hello. Did you ever get a diagnosis? Do you mind if I ask what prescription and dose antivirals you were given? After months and tests and spinal tap and labs and doctor appointments, I am being treated as though I am a hypochondriac with anxiety. No one takes me seriously and as I write this I am tingling with the painful current which is and has been pretty much constant now for 7 months. I take gabapentin at night to knock myself out, but it does absolutely nothing to stop the burning prickly sensation. I have pleaded to be treated for Elsberg syndrome, but the doctors I’ve seen haven’t even heard of it. My .v zoster IgG was 2213 and .hsv2 IgG was 8.42.
I certainly hope you found someone who could help you by now.
I don't have what you have but have had burning legs, arms, plus going numb and that has been happening since I had the Shingrix Vaccine in 2019, and latest neurologist state I have generalized acquired sensory polyneuropathy, demyelinating. Yet, not referred to anyone to get help. Called twice today to get a referral no one called me back. Can't stand the pain and it's mostly at night. Always at night as a matter of fact. I can't stand it.
Sounds like SS to me n