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@tennis123

Oh my god. Are you me lol? I have one of the exact same theories and even got prescribed antivirals b/c I had a borderline positive herpes titer. I've been having random flares of back pain in different parts of my back. When it first started it felt like a hot area or burning like inside of my spine in my lower back. I didn't really think much of it when it began the first couple of times but then it kept happening but now I regret it because of my current symptoms. I have noticed tiny little skin rashes in the area but they've never really looked like herpes lesions and were never painful. I wonder if I've been having herpes flares without major skin symptoms, if thats even possible. I never had a major outbreak that I can remember.

I am still semi convinced I have MS or CIDP or something but my MRIs didn't support a diagnosis of MS. I have an EMG scheduled for next Monday. It is terrifying because I KNOW something is majorly wrong and I'm so tired of waiting because it keeps getting worse and people around me are starting to notice because they can see me tremoring. I am getting annoyed and angry because I feel like at some point it should be considered serious enough to expedite these tests for a young person that could end up suffering from permanent neurologic sequelae. Every day that I have these symptoms and almost trip from a foot drop or feel like my legs are giving out from underneath me or feel like I'm losing my balance that I should go to the ER and beg for help but then I chicken out and don't go because I am embarrassed lol.

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Replies to "Oh my god. Are you me lol? I have one of the exact same theories and..."

Sounds like SS to me n

Hello. Did you ever get a diagnosis? Do you mind if I ask what prescription and dose antivirals you were given? After months and tests and spinal tap and labs and doctor appointments, I am being treated as though I am a hypochondriac with anxiety. No one takes me seriously and as I write this I am tingling with the painful current which is and has been pretty much constant now for 7 months. I take gabapentin at night to knock myself out, but it does absolutely nothing to stop the burning prickly sensation. I have pleaded to be treated for Elsberg syndrome, but the doctors I’ve seen haven’t even heard of it. My .v zoster IgG was 2213 and .hsv2 IgG was 8.42.
I certainly hope you found someone who could help you by now.

I don't have what you have but have had burning legs, arms, plus going numb and that has been happening since I had the Shingrix Vaccine in 2019, and latest neurologist state I have generalized acquired sensory polyneuropathy, demyelinating. Yet, not referred to anyone to get help. Called twice today to get a referral no one called me back. Can't stand the pain and it's mostly at night. Always at night as a matter of fact. I can't stand it.