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Fibromyalgia and rash pain
Hi everyone I was out at Mayo in February a
For massive breathing issues and widespread body pain,skin sensitivities but mostly I could not breathe and was exhausted. I was diagnosed with silent reflux, Gerds, fibromyalgia, an immunoglobulin g deficiency. My roseaca and eczema which were mild on my face and arms my whole life seem to have exploded and were red itchy and tingly on my face, chest and arms, made worse by the sun. Thanks, fibromyalgia and thanks to all my docs on east coast for leaving me sick and undiagnosed for almost 2 years. Well all water under the bridge now, on the road to recovery but 2 weeks ago came down with all over red body rash, very red, not raised, very tingly and painful. Was on prednisone, topical steroids, massive antihistamines, and nothing in s helping. Antihistamines made it slightly less red but not less painful. Drs here are stumped. Any ideas??? Trying to figure out if this is my personal version of a fibromyalgia flare, and if so how to treat it?
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@randyste Welcome to connect Randy . Ive had fibromyalgia along time and when I have a flare Ive never had a red rash on my body. However when I had infectious mono I did but the rash didn't hurt I don't think it was over 40 yrs ago . With all you have now with the rash have you seen a Immunologist? Or any other specialist? The Epstein Barr virus was the culprit in my blood at that time. Just a thought Hope you post again . Others may have other suggestion on here .
No I have the same thing but my rash is raised sometimes I feel like I have bugs crawling all over me and the sun burns my scalp like crazy cause I have it in my head and back of my neck.. I went was diagnosed for fibromyalgia alls they could tell me was do online videos take quizzes of course for a price.. kinda regret driving all the way to Minnesota for this lousy crap.
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1 ReactionDid you go to the Mayo for your fibromyalgia? Did they offer you any meds, or are you taking any meds for the pain? I was recently diagnosed and have pain all day (no rash). The only med I just started trying was low dose naltrexone. You have to start at a very low dose and work up to 4.5mg so it takes a while before you get any benefit, and not everyone does.
Yes I went no meds because I have to take online classes to learn to balance my life ..ya know stress and stuff .. I have pain a rash all over my head neck chest now legs its so itchy but burns.. no one can manage pain or want to do anything when in pain.. I dont feel like it or even want to waste money on that .. because like I said a perfect world we wouldnt need doctors.
Good morning, @toony - I'm Rachel, it's nice to meet you. I'm sorry about your fibro and rashes. I'd like to support you, but am a bit confused. Do you mind clarifying about the online classes you "have" to take? Are they an option and suggestion, or a requirement for a bigger picture of pain management?
I know how awful it is to suffer from symptoms and live with chronic conditions. I live with CSS, quite similar to fibromyalgia. In all honesty, I would have LOVED for one of my doctors, back in the day, to present me with an option of self-help and learn how to manage stress vs. more pill popping and invasive procedures that up ticked symptoms anyway. Pain is pain, I get that, but all of the fuel lines like stress, anxiety, depression, fear, etc..., "fuel the fire" and are toxic in making things worse. So very much goes in to managing chronic symptoms.
As frustrating as it all is, you are not alone, and I'm happy you found Connect. Peer support and encouragement is another important pain-management tool - we're pretty good at it around here. What are your next steps? Are you proceeding forward with the classes? Can I help in any way?
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1 ReactionOn line classes to control your stress etc.. yes but shouldn't cost that much I am sorry but, that's money grabbing after I sat there and said I didnt want alot of bills .. and I have dealt with pain and not feeling well after everything I went through.. and I would have known about this and what I was going to have to go through.. I wouldhave let cancer take its course. I'm not into pill popping but , apparently there plans aren't helping either because if you can control your health with stress classes we wouldn't need doctors !!!