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@cupofsunshine

I have stayed there for a week back in February, as a practice run. It would be hard for me to know if it will work or not, tho, because im not sure how i will be doing thru the transplant. I cant imagine then kicking out a bmt patient just for trying to eat to stay alive. But, really, they are seriously so so strict. they have signs everywhere that say "no eating in the rooms". But this last visit to the GoL transplant house in May, the lady said they sometimes have to makeaccomadations (for feeding tubes?), but she didn't explain that fully. There are no tvs in the rooms, its just two beds (you can have a third visitor for an additional nightly fee) and one bathroom, a dresser, a closet , a recliner or chair and a laptop cubby. It is very quiet tho. Yes, when i finally had my in-person social worker interview/appointment, the social worker said that there is about one month of coming in every single day. The hotel gave me the nightly fee and that came out to 6k a month, and so i felt like that was completely ridiculous. An apartment in town (priced around 900 to 1500/ month. The GoL if only 900 a month (@30 a day for two people). But I agree with you, if im looking really really sick, why on earth would i want to leave my room just to go eat. 🙁

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Replies to "I have stayed there for a week back in February, as a practice run. It would..."

I found a good conversation for you to check out regarding lodging during transplant in Rochester!
You might find some helpful suggestions!

Lodging during transplant
https://connect.mayoclinic.org/discussion/lodging-during-transplant/