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Waldenström's Macroglobulinemia

Blood Cancers & Disorders | Last Active: Mar 3 10:11am | Replies (129)

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@drwill

Thank you so much for your in-depth response. Great information and much appreciated.

I doing well. I had the first infusion with only the Bendamustine. I had some slight issues mainly due to hydration. My next session will include the Rituximab. I’m told it’s a much longer process because it has to be administered slowly. Looking forward to it.

Thanks 🙏🏾

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Replies to "Thank you so much for your in-depth response. Great information and much appreciated. I doing well...."

Hi Patrick, I’m glad to hear the first infusion went well. I know it can be a little anxiety producing the first time or two. I can’t remember if I mentioned it or not, but the first Rituximab infusion occasionally elicits a reaction. That’s why it’s administered very slowly.
It’s nothing to fear because the infusion nurses are right there and will quickly slow down the rate of flow and administer benadryl and/or a steroid and sometimes a dose of tylenol precedes the session.
I know this is an eyebrow raiser but it’s pretty common and anticipated by the nurses. Once the corrections are made it’s clear sailing after that. As you learned, make sure you keep up your hydration before and after sessions.

@valandsheri were awesome in their response for you regarding Val’s similar course of treatment. I love how Connect brings people together! ☺️
When’s the next round?

I’m my first Rituximab infusion as well. I’m hoping for no or minimal side effects. Thanks for your update and all the best with the rest of yours as well.