@jjohnson8747 Look, my friend, you may think I'm nuts for suggesting this and I probably am nuts anyway. But What I am going to suggest has helped me a lot, although I don't think I have the same crud you have. I first realized that I had something systemically wrong with me when I was about 6 or 7 years old. A doctor, who was also a personal friend of the family, suggested that I might want to write this stuff down so I could mention later if I needed to. Besides, he said, it will give you a little control over your body and your health. So I did, at least off and on, now for 70 years. And now I am nearing the end, and if nothing else, I can spit out the details of having these pages all this time, and what has worked and not. Anyway, it makes me feel a little stronger that I am now able to tell my children, grandchildren and great-grandchildren what is happening to me and will one day happen to them. So I suggest to everyone with a very serious disease as my Gelsolin is and your lymphoma is, write it down. At least your families will be able to know what your are thinking and feeling as you go through this ordeal, and what you have felt was important. My daughter in law passed on with NHL about 10 years ago, And I still learn something from her almost every day. Such as, when the harpist came to her house and played for a couple of hours, did that help her? She could not write it down but I could see that it helped dramatically. You can have a copy of my story free at https://bit.Ly/1w7j4j8 under "Amyloid and Old Karl." Be at peace with your heart and mind. Old Karl