Hello @mepowers, thank you for sharing your experience with your treatment at Mayo Clinic. You mentioned that you are functional and well following a tough go with your treatment. If you don't mind sharing, how has your recovery been since spending 76 days in the hospital? That is a long stay, but it is great to hear you are progressing, is each day better than the last?

I actually didn’t spend 76 days in a row. Each time I went in for my high dose Methatrexate treatments, I had to stay for a minimum of four days. I went in every other week for the first half of the year and then monthly for the second half. I was able to do Rituxin as an out patient at the Cancer Center and Temadar at home. The first half of the year the treatments were busy killing the lesions. By about June, the Cancer was gone, but my protocol had me continuing the treatment. My cognitive abilities were severely impacted with the many lesions and certainly that improved. The first part of the year I survived Cancer, and during the second half I survived the treatment. Hospital stays were rough being connected to the IV 24x7 along with the ensuing side effects of the treatments exasperated by bad food and lack of sleep. By the end, I felt I knew more about my treatment than the revolving door of residents. This was at the hospital in NM, not Mayo. Mayo is a five star resort compared to the 50 year old hospital I was in. Care was fine,but the facility was awful with shared adjoining bathrooms and showers down the hall. The chemo kills everything, so my kidneys and GI tract were the primary targets. I still have some minor issues, but nothing that can’t be dealt with. Chemo brain followed me for a good 8-12 months post treatment. I could often see the words I wanted to say, but couldn’t find the words to say. I also had and still have issues with reading retention. I listen to lots of books these days. I was super active prior to being sick. I didn’t do much besides walk on a regular basis while I was undergoing treatment due to the fatigue factor. Once I was done getting treatment, I started working with a trainer that helps me reach my potential every week. At the nine month mark, I competed in a competition called the Sampson Challenge where there are 10 events. My goal was just to finish it. I ended up coming in second in the 50+ Female division. Every day I feel gratitude for my good fortune.