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Non Hodgkin's lymphoma

Blood Cancers & Disorders | Last Active: Oct 21, 2023 | Replies (132)

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@jaler

I also have non-Hodgkins lymphoma B cell and would like to join your support group. I am presently housebound because of a low white blood cell count and have been confined to my home. I'm at Mayo in Phoenix and receiving chemo treatment there. I have had four RCHOP treatments and am scheduled for two more.

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Replies to "I also have non-Hodgkins lymphoma B cell and would like to join your support group. I..."

It must be so tough to be housebound. Other than that are you feeling well? How were you diagnosed? Have they used Nutr****- I forget the name of it- to boost your white cells? I hope you continue with your treatments with fewer side effects. Good luck.

Since I had lung cancer in 2016 I was housebound for several months and now this one; being housebound is difficult for me because I am normally involved in several activities, volunteer at Mayo Hospital, volunteer at Musical Instrument Museum, and do charitable work. I had the shot to boost white blood cells last Monday with my chemo so they couldn't give me another one; I have to wait until my next chemo on April 2. It seems almost every day I have a different side effect. It gets very discouraging.

I didn't answer all your questions; I was diagnosed when a large lump appeared in my neck. It was outwardly visible and appeared in a very short time. However, after my first chemo treatment it was no longer visible.

Thanks. It seems I have different symptoms every day but today is a good day. They weren't able to give me the shot for my white blood cells because I had just had it a few days prior when I had my chemo. So we're waiting for my next chemo on Monday when I'll get the shot, too. I have two more chemo treatments to go. I was diagnosed back in November when a large lump appeared on my neck; I had a biopsy and found it.

Just checking in. Since being on Neurontin/Gabapentin the neuropathy is better, which I enjoy because I can walk more. I am still nauseated unless I take Phenergan and Zofran, but at least I am able to enjoy lots of veggies and some fruit, since the obstructions are gone. My head hair is slowly growing back, and maybe I will stop wearing beanies by this summer.
What does anybody have to say about my team not wanting to do a 6 month PET scan if I am not symptomatic? My only symptom was nausea over 4 years, and I still have it even though the tumor was resected and I completed R CHOP and they say I am cured. They say that because I had so much xray and nuclear medicine during those 4 years while they searched for a cause for the nausea, and that the PET is so heavy xray/nuclear medicine-wise, that it's not a good idea. I was hoping to be able to get that benign PET done every 6 mo...
Thanks for your comments....