← Return to Non Hodgkin's lymphoma
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Since I had lung cancer in 2016 I was housebound for several months and now this one; being housebound is difficult for me because I am normally involved in several activities, volunteer at Mayo Hospital, volunteer at Musical Instrument Museum, and do charitable work. I had the shot to boost white blood cells last Monday with my chemo so they couldn't give me another one; I have to wait until my next chemo on April 2. It seems almost every day I have a different side effect. It gets very discouraging.
I didn't answer all your questions; I was diagnosed when a large lump appeared in my neck. It was outwardly visible and appeared in a very short time. However, after my first chemo treatment it was no longer visible.
Thanks. It seems I have different symptoms every day but today is a good day. They weren't able to give me the shot for my white blood cells because I had just had it a few days prior when I had my chemo. So we're waiting for my next chemo on Monday when I'll get the shot, too. I have two more chemo treatments to go. I was diagnosed back in November when a large lump appeared on my neck; I had a biopsy and found it.
Just checking in. Since being on Neurontin/Gabapentin the neuropathy is better, which I enjoy because I can walk more. I am still nauseated unless I take Phenergan and Zofran, but at least I am able to enjoy lots of veggies and some fruit, since the obstructions are gone. My head hair is slowly growing back, and maybe I will stop wearing beanies by this summer.
What does anybody have to say about my team not wanting to do a 6 month PET scan if I am not symptomatic? My only symptom was nausea over 4 years, and I still have it even though the tumor was resected and I completed R CHOP and they say I am cured. They say that because I had so much xray and nuclear medicine during those 4 years while they searched for a cause for the nausea, and that the PET is so heavy xray/nuclear medicine-wise, that it's not a good idea. I was hoping to be able to get that benign PET done every 6 mo...
Thanks for your comments....
It must be so tough to be housebound. Other than that are you feeling well? How were you diagnosed? Have they used Nutr****- I forget the name of it- to boost your white cells? I hope you continue with your treatments with fewer side effects. Good luck.