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Welcome @vonbaron36 to our virtual support group on Mayo Clinic Connect for people living with cancer and specifically in this forum for people living with non-Hodgkin's lymphoma. Please meet @lacey @lissa @caretothepeople @bobc @designer @muskegonsid @maisyann @aamarion and @travelgirl.
Vonbaron - we look forward to getting to know more about you. What type of NHL do you have and when were you diagnosed?
Replies to "Welcome @vonbaron36 to our virtual support group on Mayo Clinic Connect for people living with cancer..."
Good to get to know more about you vonBaron. @travelgirl and @designer also live with follicular lymphoma.
Does anyone out there use curcumin or turmeric besides me.
Hi VonBaron36, my name is Lacey and I can relate to your condition, although I did not need any radiation, just chemo and my last one was o1-2015, been clean in all my blood tests since than. I feel good, only very tired side effects, I started taking vitamins and turmeric . I believe you have to keep yourself busy, keep involved with people and life, it really helps. Anything I can help you with by my journey so far, I'm here. Lacey
Hello @muskegonsid and @vonbaron36
I have follicular lymphoma and am on a watch and wait approach. The only signs I have lymphoma were found on a CT scan. The CT scan was performed after finding a cancerous polyp in my Cecum back on 12/23. Mayo clinic then performed a CT guided biopsy of a swollen para-aortic lymph node. That is how they found I had the follicular lymphoma. The lymph nodes have gone down in size since December when they were first discovered.
I have made changes to my life. maybe that is why?
1) NO MORE SMOKING
2) EATING as HEALTHY As I can
3) EXERCISING DAILY
4) CONSISTENTLY TAKING VITAMINS. lymphoma patients lack vitamin D ( go out in the sun each day for a few hours)
5) ELIMINATING STRESS
Vitamins I started taking daily are a probiotic, vitamin c, turmeric, enchencea, zinc, vitamin E, D3, B12, B1,B6,
I also just had my 6 month check up for my cecum cancer and happy to say there is NED.. my surgery in January removing a Foot of my colon was a success. I am on a schedule for a yearly colonopspy cause I have turned into a polyp farmer in my 50's .. They found four in my colonopscopy last week. Blood work was perfect which it has been since day one when all this started, my CEA did go down from 2.4 to 1.6. CT scans look better too so they are now moved out to every six months . My blood work has
to be done every three months.
I wish you all the best and God bless
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Hello everyone. I have follicular lymphoma. I was diagnosed two years ago. I had two radiation treatments. My PET scan 6 months ago did not show any signs of cancer. I have another PET scan scheduled for Sept.. I know my cancer is not curable but can be kept in remission for years. I am optimistic about living with it for many years to come.