← Return to Non Hodgkin's lymphoma

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Non Hodgkin's lymphoma

Blood Cancers & Disorders | Last Active: Oct 21, 2023 | Replies (132)

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@colleenyoung

Welcome to Connect, @muskegonsid. I'm glad you found us so that we can accompany you on this return to the "journey". I'd like to introduce you to @maisyann @aamarion and @travelgirl. Also please meet @hopeful33250. She's checked in to the cancer train for a third time, and is one of our Connect mentors.

Muskegonsid - what is your next step? Have you had an appointment with your oncologist?

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Replies to "Welcome to Connect, @muskegonsid. I'm glad you found us so that we can accompany you on..."

Hi<br>Thankyou very much for your kind message. I was diagnosed nearly four years ago with follicular lymphoma NHL , stage 3, and immediately began chemotherapy R CHOP which I responded to extremely well. I then stayed on track with what we call the four pillars, vitamin D ( sunshine) , exercise, sleep and diet. I enjoyed a good lifestyle during this time. Last November however, I had another surge( transformation ) not sure of the terminology but it came back. I was then chosen to have a stem cell transplant . I completed the chemotherapy for preparation R ICE but unfortunately failed at the harvest time. The chemo worked for a short time but lymph nodes are on the growth again. I am classified as palliative and am having mostly a very good life. <br>I live in New Zealand so I know treatment may differ but I just thought it may be good to read how are people are dealing with similar prognosis etc<br>Thank you<br><br>

Thank you so much for joining this group @designer. And welcome from down under. I'm sure @muskegonsid will very much appreciate hearing from someone with a similar situation.

You may be interested in joining the discussion about palliative and hospice care. IrvKay started the discussion to share experiences and to help people understand what palliative care means. https://connect.mayoclinic.org/discussion/palliative-care-and-hospice-care/ Would love to get your perspective.