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Non Hodgkin's lymphoma

Blood Cancers & Disorders | Last Active: Oct 21, 2023 | Replies (132)

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@colleenyoung

Hi @maisyann, welcome to Connect.
I'm tagging @kjs1015 @aamarion @diana63 @djzlady96 to see if they will return to talk about their experiences with Non Hodgkin's lymphoma.

Maisy Ann, when were you diagnosed? What treatment are you getting or have you had?

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Replies to "Hi @maisyann, welcome to Connect. I'm tagging @kjs1015 @aamarion @diana63 @djzlady96 to see if they will..."

I was diagnosed last March. I have had six rounds of bimustin and rituxin therapy. I am now in remission and will be on a two year maintenance of rituxin every other month with PET and CT scans every two or three months.<br />
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My daughter has lymphoma cancer and finished 6 chemo teraphies

praying for a positive outcome for her!

Hello @milanp

How is your daughter feeling now that she has finished 6 chemo treatments? Will her doctor be following on her progress in the near future.

I hope to hear from you again.

Teresa

I hope she will do well. NHL is highably treatable.

How is she now please?

First of all, I was diagnosed 20 yrs ago, I am still under Specialist monitoring every year and I am glad to say I am still ok.
At the time it was a shock to me and our family, and the first question was WHY? The Dr and the Specialist put it down to one of those things that nobody knows why. In the first 6 months I had chemotherapy which consisted of me going to the hospital for 3 hrs to get a drip going into my veins from memory every week. Just as they told me my hair from one day to the next came out in clamps, that was rather shocking, I was having a shower as usual but as I rub shampoo on my head I started to get clamps of hair in my hands. Following this treatment the Specialist decided that we needed to up the doses but to be able to do that the chemo was going to be administered in hospital so for about 6 months I had to stay in hospital overnight and all night get a drip into my veins. All this eventually passed. The long and the short is that since I have not signs of the NON Hodgkings lymphoma, at the time I remember the prednisone and the one that fixed me up was a South American Amazon drug called Mabthera or something like it. After 20 yrs I count my blessing and I idolise my Specialist who I continue to see every year so anybody who has NON HODGKINS lymphoma look at the issue with lots of positivity, believe in the power of your mind and the experience of the Specialist treating you
Wish you the best