Has anyone been prescribed EB-N5?

I am puzzled once again because you are right on the literature showing 70 mg of P5'P whether it is one capsule or two (EB-N3 vs EB-N5). Thought I had it clear in my mind, but not after looking at the literature. My bottle of EB-N5 shows the P5'P at 35 mg per capsule. It all beats me. Not going to take it until I am clear where we are, and tomorrow I am getting a fasting Vitamin B-6 lab so we will see where I am before EB-N5. This is what we have to put up with constantly with the new medical world!!

@ray666 Ray - I looked up the term "neurologist nagging" and it referred me to you. Crazy, right? So, you might just be breaking ground in the medical journals! I've found that most PCP's don't do much testing on the B's, ok perhaps B-12 but I had to ask about my B-6....that was to the neuro doc. Ughhh....frustrating when you have to be your own advocate. I've seen Debbie @dbeshears1 comment on that often. I see my neuro doc in Sept and hope to discuss with her the EB-N3. Like many of us, we go into these supplements with the thinking....OK, is this going to help me? And I do believe some people benefit. Again, getting back to my belief...it all has to do with the cause of the PN as to the effect supplements have on each person. Personally, I'm still searching and found very little that has helped me, and I think there are many in the same boat. But you never know!! Ed

@dbeshears1 - Wow...you are right again! I went to my PCP yesterday morning and last night, I sat down and actually read the notes they hand to you on your way out the door. The reason you were here today, etc. Some of the info was not correct. I have not decided what to do about it, just let it go or focus on the real important issues that are incorrect. So, you are not alone on this one.

Good catch! My bottle also says 35 mg. Why on earth they wouldn't say 35 mg per capsule in their literature, beats me. It sure would spare folks like us a lot of puzzlement. I'm still going to look into this. It sounds like you are, too. If you and I can get a straight answer once and for all, not only would it put us at rest but also save others a lot of unnecessary confusion. A fasting B6 lab? I'd not heard of that. I sent a note to my PCP this morning asking about new blood work, this time to include B6. I haven't heard back yet. Maybe she'll suggest a fasting B6 lab. I'd be for that. ––Ray (@ray666)

(@njed) Ed – I wonder, is a neurologist nagger anything like a horse whisperer? You probably noted that I'd written to my PCP this morning, asking about my B6. I haven't heard back yet (she's usually an after-hours responder). But combing through my lab test results of the past few years, I see no mention of B6, only B12, and B12 only once. A few minutes ago, I replied to a post in which a "fasting B6" lab test was mentioned. That was a new one for me. When I hear back from my PCP, if she should suggest a fasting B6 test––or any B6 test that will give me an accurate understanding of where I stand––I'll be all for it! Right arm? Left arm? Jab me anywhere, I don't care. LOL. You may have also noted a few earlier posts in which I and another poster discovered that our EB-N5 bottles indicate 35 mg of B6, not 70 mg; in other words, my daily intake is 70 mg, not 140 mg, as I'd earlier thought. That's still a lot, but at least it's under the NIH's 100 mg daily max recommendation. This is just another example of how we patients must be our own advocates––our own researchers, too. Back only a few months ago, when I got my PN diagnosis and started hanging out evenings (sometimes mornings and afternoons, too) at Mayo Connect, I'd never have guessed how involved I'd become. I'm glad, though; all this involvement keeps me sane. LOL ––Ray (@ray666)

The fasting B6 lab was ordered by a neurologist at the University of Colorado.

Hi, zav (@zav)

Just for now, my PCP advises against blood work specifically for B6 but that I monitor any changes in symptoms until she and I meet for my annual in September. I'm still waiting to hear from my neurologist; he may advise otherwise. For now, I'm content, however, particularly now that I see (still to be confirmed, of course) each EB-N5 capsule is 35 mg, not 70 mg. (I plan on calling the manufacturer today for more clarification than just what I read on the bottle.)

Ray (@ray666)

I just sent an e-mail to the manufacturer to follow up on my telephone conversation with the pharmacist. So I went for my B6 blood work today, and it may not be covered by Medicare which does not relate B6 to neuropathy. Cost of the test $422!! We will see what Medicare does with it -- they usually pay on things that are unusual or questionable upfront, but there could be another battle coming. I think a professor or neurology knows that B6 is related to the issue!

Frank (zav)

$422! That explains why my PCP advised that I hold off on getting a B6 test now but instead take a wait & see approach, at least until my September annual visit. She had said something about the test not being covered.

Depending on what state you live in you can order blood tests on time through Walk In Labs and go to a local Quest or Labcorp and get a b6 test test as well as most other tests without a doctor order. The last time I got a b6 test it cost me $68. Test for all b vitamins is pretty expensive even through Walk In Labs. There a few states in US that do not allow people to get tests without a doctor orders but the website will tell you if that's your state.