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PV and fatigue

Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (92)

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@jerrlin

I am on a phlebotomy every 3-6 months and 2 baby aspirin a day. Each and every body is different. I chose at this point not to do chemo meds, but if the time comes when I need it, I will absolutely revisit my options. I was told by 2 oncologists that the meds only help symptoms but do nothing to slow the disease. If anyone knows anything different, please comment as I am always open to new info on this disease.

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Replies to "I am on a phlebotomy every 3-6 months and 2 baby aspirin a day. Each and..."

I have had PV for over 12 years it just about killed me at the beginning, but very blessed to say that I'm doing well 12 years later my blood count is perfect. I take jakafi to keep my blood count under control, and I take eliquis as a blood thinner. The only problem I have is difficult time getting air I'm not sure what's going on with that but it's been a rough go LOL