What equipment did you use for incontinence after prostate surgery?

Posted by mikayla @mikaylar, Jul 4, 2023

I am writing or a friend. He had prostate surgery 3 months ago. Does anyone know of equipment he could use other than diapers or pads? He has tried a few external catheters but they all leak or kink. Thank you.

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Colleen Young, Connect Director | @colleenyoung | Jul 4, 2023

Hi @mikaylar, members in the Prostate Cancer support group like @maxvt @ssonkin @dtalle @vjlvpjalways @jerryegge and others have shared their experiences with incontinence post prostate surgery and may be able to offer suggestions.

Did your friend have prostate surgery for cancer or a different prostate issue?

maxvt | @maxvt | Jul 4, 2023

In reply to @colleenyoung "Hi @mikaylar, members in the Prostate Cancer support group like @maxvt @ssonkin @dtalle @vjlvpjalways @jerryegge and..." + (show)

You did not mention this, but I strongly urge having Pelvic Floor PT. I did several weeks of this before and was fully continent. If there is a Baylor Scott & White clinic near, I recommend them heartily. I’m sorry your friend has to go through this. I wish him all the best.

vjlvpjalways | @vjlvpjalways | Jul 4, 2023

In reply to @maxvt "You did not mention this, but I strongly urge having Pelvic Floor PT. I did several..." + (show)

Agree doing kegals constantly not getting results Urologist put me on a script nothing, radiology oncologist ordered therapy only been once so far already see results..go again Thursday it’s every couple weeks..worth it…

dtalle | @dtalle | Jul 4, 2023

In reply to @colleenyoung "Hi @mikaylar, members in the Prostate Cancer support group like @maxvt @ssonkin @dtalle @vjlvpjalways @jerryegge and..." + (show)

Mine was for cancer and now I am being treated for possible migration in the lymph nodes. To boot during the prostatectomy surgery they took out scar tissue from a previous colon surgery and this was just after bladder surgery for tumors. My biggest problem now is the incontinence going into its 12 week.

mikayla | @mikaylar | Jul 4, 2023

In reply to @colleenyoung "Hi @mikaylar, members in the Prostate Cancer support group like @maxvt @ssonkin @dtalle @vjlvpjalways @jerryegge and..." + (show)

Yes it was cancer

mikayla | @mikaylar | Jul 4, 2023

In reply to @maxvt "You did not mention this, but I strongly urge having Pelvic Floor PT. I did several..." + (show)

Great idea. Thanks. I will tell him.

maxvt | @maxvt | Jul 4, 2023

In reply to @mikaylar "Great idea. Thanks. I will tell him." + (show)

To do my Kegels at home, as I learned the different ways to incorporate them into various core-building exercises, I bought a “resistance band set” from Amazon, very similar to what I used at the BS&W clinic. Copy this description “Whatafit Resistance Bands Set, Exercise Bands with Door Anchor, Handles, Carry Bag, Legs Ankle Straps for Resistance Training, Physical Therapy, Home Workouts” and search Amazon. It’s a $40 kit today (just checked) at $23. I still use them - my surgery was 8/23/2022. I wish some doctor had advised him on this PT before the surgery. Keep me posted, please. Good Luck!