Anyone taken Evenity (romosozumab) for Osteoporosis?

Yes, I'm really sorry to hear that outcome @windyshores. If they said it was counterproductive, ineffective, or *harmful in that sequence, I'd understand. We really have to be our own advocate, too much has happened where the medical community has been asleep.

Thx for all your info, much appreciated.

Before I started Evenity I was taking a big dose of calcium (70% of daily calcium spread through out the day) plus Vit. D. My blood calcium was too high so my doctor wanted me to cut way back on the calcium supplements. Now I try to get my calcium with 12 ounces of milk, a cheese stick, a handful of almonds, only one calcium pill (which amounts to 20% of calcium), a multiple vitamin which has only 8% calcium)and other traces in food. I understand you can overdo the calcium supplements. Hoping my routine is sensible. Has anyone else ever been told they are taking too much calcium?

@rola there is no harm in doing Evenity after Tymlos, according to Dr. MCormick, the chiropractor osteoporosis expert with whom I just spoke. However, he leaves that option out of his new book "Great Bones" as well because studies have not yet been finished.

He mentioned that he has no liability in suggesting it because he is not a prescriber. The Boston doctors are very evidence-based meaning there needs to be a study or studies supporting a protocol before they will prescribe.

I am not surprised they won't prescribe Evenity after Tymlos. I am actually surprised that so many docs do. But it seems other medical environments are less conservative and evidence-based.

I am my own advocate but have hit a wall with no's from all docs.

@windyshores, I can see you are your own advocate by all your research. Evenity seems to be so great at building bone before a bs, I guess I was hoping to be able to build as much as possible before thinking bs. I was hoping for you too! Take care.

@rola I am almost done with Tymlos 🙂 Good luck!

I just had my first 2 injections with Evenity for my Osteoporosis so I don’t have much too share. I have noticed that both arms are very sore which is understandable but my concern is insomia. I haven’t slept since my injections. It most likely won’t be the same for all of you sitting on the fence on what drug would be the best. If anyone has had Evenity before with INSOMNIA please reach out too me. Would love too share stories! Is it just “me?”

I have pretty severe osteoporosis which I tried to treat naturally (food, nutrients, exercise) but it only got worse. Two docs with whom I consulted strongly advise me to go on Evenity, however I am very nervous about it given the warnings and the short amount of time it has been on the market. The alternative is Prolia, which is also not without risk, however it is milder and I know many people that went on it and had no issues. When I read your story from 2020, it sounded very similar to mine. It sounds like you tolerated Evenity well. Do you have any advice for me?

@gretch19 you could consider Tymlos or Forteo, which build bone. Prolia is not an anabolic bone-builder and there are problems with it because when you stop, there is an abrupt loss of bone density and increase in fracture risk.

I chose Tymlos over Evenity in the first place. You inject with a pen each day and I was able with doc's approval to adjust the dose, starting with a low dose and moving up. This gave me more control over side effects.

I never reached full dose but had amazing gains on Tymlos.

Thank you. Never even heard of that one. I will look into it

@gretch19 Evenity is much newer. I went from severe osteoporosis of my spine to borderline on Tymlos. Many are doing Evenity after Tymlos but you cannot do the other way around, another argument for doing Tymlos first. Forteo and Tymlos are standard meds for severe osteoporosis.