How did you get relief with a spinal stimulator? Adjustments?

Posted by glenjunderwood @glenjunderwood, Mar 19, 2022

My name is Glen and i have had the Nevro HF10 spinal stimulator implanted since Sept 1, 2021 and the company rep hasn't been able to dial it in on my terrible lower back pain yet. I have complete confidence in this unit because the temporary one that they inserted worked unbelievably well. It's been 6 months and counting with no relief thus far. I'm hoping to reach out and hear from anyone out there about their experiences with this Nevro unit. Please help if you can! Thank You!

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Hi Glen, my name is Ann and I have the same unit, was implanted September 2022. Still playing with the program as my excruciating back/leg/groin pain has disappeared completely on the right side but now having pain in my left side so we’re working on that. As I don’t know the extent of your pain or why you had it implanted in the first place, I don’t think I could recommend the right program to try. However, I’m currently set at 1 on the ladder and program 1. We’ve been up and down like crazy but I’m currently trying this for 2 days then my rep. is going to walk me through how to set it to below the program 1 leaving the ladder at 1 also. You could give that a try if nothing else seems to be working for you - you shouldn’t be still going through this after six months. Please let me know how it works for you. Take care and I’ll keep my fingers crossed.

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@colleenyoung

Hi Glen (@glenjunderwood),
I have read several accounts from other members where they experienced a different level of pain relief from the temporary implant and the permanent implant. I'm tagging a few members like @sbrown293 @martyk @marieh @pusher @scruffy1 @dogsma @chefmike2010 @lifetimepain @jimhd who have experience with spine stimulators, some of whom had the Nevro HF10.

While we wait for others to join in, here's a list of related discussions on Connect that you may wish to review and ask questions to specific members.
– Implantable neurostimulator for chronic pain https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/
– Has anyone one tried the HF10 Spinal Cord Stimulation Device?: https://connect.mayoclinic.org/discussion/hf-10-spinal-cord-stimulation-device-relieves-back-and-leg-pain/
– Spinal cord stimulation: Will Nevro help when Medtronic didn't? https://connect.mayoclinic.org/discussion/nevro/
– Has anyone had the Stimwave spine stimulator installed? https://connect.mayoclinic.org/discussion/has-anyone-any-had-the-stim-wave-installed/
– T.E.N.S. for spinal stenosis pain https://connect.mayoclinic.org/discussion/t-e-n-s-for-spinal-stenosis-pain/
- Anyone used Spinal Cord Stimulation for pudendal nerve entrapment? https://connect.mayoclinic.org/discussion/anyone-experienced-in-using-scs-for-chronic-painb/

Glen, it sounds like you are working with the company representative. How often do they adjust the settings? What options have they suggested?

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I have a permanent Nervo HFX stimulator and I am having the same issue
The trial gave me 90 % pain relief but the permanent isn't. My rep keeps having me change settings, but I'm only getting a little relief on lower back. Yesterday she had me change the program to P2 level 6 and now I'm not getting any relief. I do not know how to reprogram it back to P1. Anyone know how I can change it back?

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I had the Nevro trial implanted in March for 5 days. I only got about 25 to 35% pain relief for my lower back and the toes of my right foot. I was expecting at least 50% relief. I did not choose to have the permanent one implanted. About 4 weeks ago I went to a different pain management doctor and tried the Boston Scientific wave runner SCS seven day trial. Unfortunately one of the leads came out and the other lead had moved. Not sure what my next move will be. Perhaps a pain pump trial. Has anyone tried the CALMARE SCRAMBLER therapy for neuropathy /nerve pain?

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@martyk

I had the Nevro trial implanted in March for 5 days. I only got about 25 to 35% pain relief for my lower back and the toes of my right foot. I was expecting at least 50% relief. I did not choose to have the permanent one implanted. About 4 weeks ago I went to a different pain management doctor and tried the Boston Scientific wave runner SCS seven day trial. Unfortunately one of the leads came out and the other lead had moved. Not sure what my next move will be. Perhaps a pain pump trial. Has anyone tried the CALMARE SCRAMBLER therapy for neuropathy /nerve pain?

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I have not yet tried the Calmare, but hear it works wonders. The trick is finding one. Go to calmarett.org. you should be pleased if you have one in your area. Conn and N.J. seem to be very successful. Goon Luck.

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I will look into it. Thank you.

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@martyk

I had the Nevro trial implanted in March for 5 days. I only got about 25 to 35% pain relief for my lower back and the toes of my right foot. I was expecting at least 50% relief. I did not choose to have the permanent one implanted. About 4 weeks ago I went to a different pain management doctor and tried the Boston Scientific wave runner SCS seven day trial. Unfortunately one of the leads came out and the other lead had moved. Not sure what my next move will be. Perhaps a pain pump trial. Has anyone tried the CALMARE SCRAMBLER therapy for neuropathy /nerve pain?

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Calmare Scrambler Therapy seems to be a very effective option for neuropathic pain. Here's an article about it by the provider in New Jersey, Dr. Michael Cooney: https://www.paintreatmentdirectory.com/posts/calmare-therapy-for-neuropathic-pain-relief

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@cperlin

Calmare Scrambler Therapy seems to be a very effective option for neuropathic pain. Here's an article about it by the provider in New Jersey, Dr. Michael Cooney: https://www.paintreatmentdirectory.com/posts/calmare-therapy-for-neuropathic-pain-relief

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I have heard of Dr. Michael Cooney. Unfortunatley, he is an hour and fifteen minutes from me. You have to go every week day for 2 weeks. Might be to much driving for me. I can't seem to find any other practitioner closer to where I live. Thank you

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@martyk

I have heard of Dr. Michael Cooney. Unfortunatley, he is an hour and fifteen minutes from me. You have to go every week day for 2 weeks. Might be to much driving for me. I can't seem to find any other practitioner closer to where I live. Thank you

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Look, my pain specialist is just under an hour from us. But, he was the only doc who worked with the morpine pain pump. Sometimes, you just have to bite the bullet and do what's necessary. An hour and a half , 2 days a week, could turn out to be one of the best investments of your time that you've ever made.

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Thank you. But it's 1hr. 15 minutes each way for 10 days in North Jersey traffic, not two days. Did the pain pump work for you?

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@sydnee11

Hi Glen, my name is Ann and I have the same unit, was implanted September 2022. Still playing with the program as my excruciating back/leg/groin pain has disappeared completely on the right side but now having pain in my left side so we’re working on that. As I don’t know the extent of your pain or why you had it implanted in the first place, I don’t think I could recommend the right program to try. However, I’m currently set at 1 on the ladder and program 1. We’ve been up and down like crazy but I’m currently trying this for 2 days then my rep. is going to walk me through how to set it to below the program 1 leaving the ladder at 1 also. You could give that a try if nothing else seems to be working for you - you shouldn’t be still going through this after six months. Please let me know how it works for you. Take care and I’ll keep my fingers crossed.

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Glen, I had my stimulator installed in November of 2021. The issue I have been having is I get overstimulated. The machine does take my neuropathy pain down but no complete relief. With the over stimulation I can be on a program and get relief but I am not able to stay on that program without getting overstimulated. Nevro has been pretty good about working with me and I just go in and get adjusted. It works for awhile but then need to get adjusted again. I was hoping for so much more since the trial went fairly well. Hopefully your Nevro tech is patient and persistent in helping you. I have been fortunate that way.

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