What are people's experiences with spinal fusion surgery?

Posted by heatherm @heatherm, Oct 27, 2020

After trying pretty much everything, with little pain relief, my surgeon has put me on his priorty elective list for fusion of my L3/4/5, and maybe S1. I've heard both positive and negative experiences with this surgery. What are people's experiences, with this? ,

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@covenantdga

In my case, not the best result. Was diagnosed with both peripheral neuropathy and spinal stenosis. Vanderbilt specialists were saying one thing (peripheral neuropathy) and an other prominent neurological surgery group saying spinal stenosis. Tried to get in to Mayo and John Hopkins to get another opinion to break the tie but I guess because I had been seen and diagnosed by two competent groups of specialists, I was turned down. I finally had to make a decision as I was beginning to fall down.

So, in mid-May of last year, at the age of 67 I had both a spinal fusion and laminectomy performed. 12 hour surgery from T-10 to S-1. Brutal. The first month I was in so much pain even under medication I just wanted to die.

So, fast forward to today, 13 1/2 months later. Am really no better. While I advanced from a wheelchair to a walker to a cane, I am still in considerable pain even though I am on muscle relaxers and pain medication (Oxycodone) under the supervision of a pain management clinic. I am still very unstable and feel as though I don’t have the connectivity in my back / spine to be able to walk.

Have done the electronic stimulator for six (6) months to promote bone and nerve regeneration, continued physical therapy and also recently a laser therapy that is fairly new technology and not covered by insurance.

Bottom line is is that after all that I have not improved my quality of life and probably have added to it extra pain and discomfort, fatigue, and continued lack of stability on my feet and mobility.

Just had an MRI done yesterday for a third spine specialist to look at my back to determine if a grant else is going on. He mentioned when he looked at a regular e-ray last week that I might have some screws loose which might explain the continued pain after over a year.

Am not complaining if it sounds that way. Am grateful to still be hanging around. So may other people have is a lot worse then I do. Just trying to encourage anybody who is contemplating any kind of back / spine surgery to prayerfully consider the potential risk and the fact that you may not be any better and maybe worse after the surgery.

Mayo Connect is a life saver. To have a forum by which you have others and a support group to talk to who have been through similar experiences and can relate has been extreme helpful to me.

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Seems like you should be better than "just hanging around". From my own experience and talking to others who have been rushed into spinal fusion with all kinds of promises, the end result is often no help. I actually felt a little worse 4 months after L5-S1 fusion, Interestingly, the orthopedic surgeon who did the fusion saw spondylothesis at that joint. No other radiologist picked this up. I believe I had had 2 or 3 MRIs up to that point. Makes one take pause. My best advice is to gat 2 or 3 other opinions.

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@pmhall

https://www.medtronic.com/us-en/healthcare-professionals/products/spinal-orthopaedic/spine-robotics/mazor-x-stealth-edition.html
My surgery was a only a 3 level open surgical fusion, and very complex. My surgeon was the first in the US to use the Mazor robotic approach. I was hospitalized for 4/5 days and then transitioned into the hospital’s acute recovery unit for 3 weeks. I had 3 physical therapy and occupational sessions daily, it was difficult. I also had a neurologist, his PA and a RN overseeing my care plus an assigned nurse and nurses aides. A hospitalist, my surgeon, his surgical assistant and PA came to see me several times while I was in the unit. This group took a team approach to decisions concerning my care, arranged for an emergency MRI and OR room for my seroma and another drain.

The skill of my orthopedic surgeon was a major blessing, and he used the Mazor robot to set the screws (99.9% accuracy) in the fusion hardware, which is so important. My surgeon also had another physician on his surgical team who monitored the nerves in my spine as he worked on each vertebrae.
I was well trained and prepared to go home after receiving this care. Did I mention my surgeon prayed with me before went went in to the OR.

The surgeon’s name is Neville Alleyene and his hospital affiliation is TriCity Medical Center in Oceanside CA.

Above all, please don’t give up. God led me to this doctor and I suffered for two decades before finding a doctor who said he could fix my back! AND HE DID. The first couple of months after surgery was rough, but is now very tolerable.

May the Lord bless you as well.

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I would say that the Lord led you to the perfect situation. The care and nymber of medical personnel who assited in your care and recovery is unheard of back here in PA. There may be such a team of specialists in our PA area, but I have yet to find them. Most office visits are 15 minutes in a little cubical with PA and then doctor. Quick review and a short discussion, then, OK, let's see you back in a week or two. I have often said, even on this website, where are all the doctors, specialists, etc. working together on my problem (like one sees on the TV shows)?

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@heisenberg34

Seems like you should be better than "just hanging around". From my own experience and talking to others who have been rushed into spinal fusion with all kinds of promises, the end result is often no help. I actually felt a little worse 4 months after L5-S1 fusion, Interestingly, the orthopedic surgeon who did the fusion saw spondylothesis at that joint. No other radiologist picked this up. I believe I had had 2 or 3 MRIs up to that point. Makes one take pause. My best advice is to gat 2 or 3 other opinions.

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Thanks so much for your reply. Have never heard of spondylothesis but will ask when I am at the doctor on Monday.

I guess when you put this into the proper perspective. What was missing in my original posting was that on December 10th of 2020 I had a gallstone attack. Found out weeks later that I had been in a medically induced coma in the ICU for there weeks and needed up in the hospital for a total of nine weeks. All my muscles had atrophied and had to learn to walk, stand, eat and speak. My family was told my the doctors that I would not make it as my organs had begun shutting down. One doctor told my son that of the 52 people in the ICU, I was the sickest.

Had scheduled my original back surgery a week before my gall stone attack but that obviously has to be postponed because of my hospital stay. That operation was to be from S-1 to L 3 I believe. Shows what a difference a year makes.

In any event, I just thank GOD that I am still here. If I have to endure chronic back so be it. Will still continue to see if there are other treatments that might make my circumstances more tolerable

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@heisenberg34

I would say that the Lord led you to the perfect situation. The care and nymber of medical personnel who assited in your care and recovery is unheard of back here in PA. There may be such a team of specialists in our PA area, but I have yet to find them. Most office visits are 15 minutes in a little cubical with PA and then doctor. Quick review and a short discussion, then, OK, let's see you back in a week or two. I have often said, even on this website, where are all the doctors, specialists, etc. working together on my problem (like one sees on the TV shows)?

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You correct, and I also had several friends praying for me. There can be no doubt that God led me to Dr. Alleyene.

I don’t know of any other hospital in southern CA that provides acute recovery care like Tri City Hospital for their serious surgical patients (brain, back, etc.).
I’d be willing to guess that Dr. Alleyene helped create this program, with the help of the Lord. He always brought God in our conversations. And, both he and his PA spent at least 45 minutes with me in every appointment, even though he is extremely busy.

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@pmhall

https://www.medtronic.com/us-en/healthcare-professionals/products/spinal-orthopaedic/spine-robotics/mazor-x-stealth-edition.html
My surgery was a only a 3 level open surgical fusion, and very complex. My surgeon was the first in the US to use the Mazor robotic approach. I was hospitalized for 4/5 days and then transitioned into the hospital’s acute recovery unit for 3 weeks. I had 3 physical therapy and occupational sessions daily, it was difficult. I also had a neurologist, his PA and a RN overseeing my care plus an assigned nurse and nurses aides. A hospitalist, my surgeon, his surgical assistant and PA came to see me several times while I was in the unit. This group took a team approach to decisions concerning my care, arranged for an emergency MRI and OR room for my seroma and another drain.

The skill of my orthopedic surgeon was a major blessing, and he used the Mazor robot to set the screws (99.9% accuracy) in the fusion hardware, which is so important. My surgeon also had another physician on his surgical team who monitored the nerves in my spine as he worked on each vertebrae.
I was well trained and prepared to go home after receiving this care. Did I mention my surgeon prayed with me before went went in to the OR.

The surgeon’s name is Neville Alleyene and his hospital affiliation is TriCity Medical Center in Oceanside CA.

Above all, please don’t give up. God led me to this doctor and I suffered for two decades before finding a doctor who said he could fix my back! AND HE DID. The first couple of months after surgery was rough, but is now very tolerable.

May the Lord bless you as well.

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That sounds like an amazing surgeon you found! May I ask how insurance handled this very intense surgery and that you had a long hospital stay? I guess if u are on Medicare, approval went easier.

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Have always held on to the belief that with GOD all things are possible ! Nothing quite like having a competent and well trained medical professional / physician who prays over you. GOD is the ultimate physician ……

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@upstatephil

A second response today...Yes, pre-surgical good physical conditioning is a factor in recovery. BTW - I can't imagine a surgery just to remove the screws. That option has never been presented by my neurosurgeon - nor would I be interested in another cycle of surgery/recovery just for that reason!

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Reply to @upstatephil
Usually the only recommend taking screws and rods or cage out is when the pain continues to be intolerable.

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@covenantdga

Have always held on to the belief that with GOD all things are possible ! Nothing quite like having a competent and well trained medical professional / physician who prays over you. GOD is the ultimate physician ……

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@covenantdga
As a nurse anesthetist I may have the skills and training to do many things but God is the one that makes the calls!!!!!!

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Got that right. Not sure if you saw one of my previous posts. Before my Laminectomy and Spinal Fusion surgery in May of 2022, my original back surgery had to be canceled in January of 2021. Had an unexpected gallstone attack that went into Acute Pancreatitis/ Necrosis and Sepsis. Was in a medically induced coma in the ICU for 3 weeks and in the hospital for 9 weeks. At the most critical time when my vital organs were shutting down, the doctors called my family in and told them that I would not make it through the night. They went to the parking garage of the hospital, gathered together and prayed and let me go.

Well the fact that I am 2 1/2 years later typing a response tells you how that turned out. No way to describe it but a miracle from GOD. One of the doctors told my son during the most critical time as I was close to death that of the 52 people in the ICU, I was the sickest. Yes, He used and worked through many talented doctors, nurses, technician, medicine and technology but ultimate He is the one who saved me from dying at that point (Psalm 30). Just eternally grateful as I have been able since then to see another 3 grandchildren born into this world along spending time with the other five.

How can I be anything but grateful and praise Him ?!

Hope you have a blessed 4th and thanks for logging in …….

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@gloves5231

That sounds like an amazing surgeon you found! May I ask how insurance handled this very intense surgery and that you had a long hospital stay? I guess if u are on Medicare, approval went easier.

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The surgery and 4-5 day hospital stay was covered by my United Health Care Medicare Advantage PPO (Primary Ins.). My insurance will pay for 100 days of skilled nursing care. The hospital tried to get approval to transfer me into their Acute Recovery Unit after my surgery and it was denied by UHC. Then my surgeon called to discuss my case and he was also denied.

So then my husband (quite persuasive) called UHC and explained that our home had steps down into our living room and kitchen. We also have a 20 step stairway up to the bedroom and bathroom showers, we don’t have a shower downstairs. He told them I was in my 70’s and needed more medical care than I our skill nursing facility provides (he called them before my surgery to find out what services they provided). He explains that I needed more than one physical therapy session a day, and additionally needed the medical care that TriCity’s recovery unit provided. He told them about the intense nerve pain I was experiencing and his concern about my other health issues (heart, pain ). After talking with our UHC advocate, he wanted to help my husband get approval for the Acute Recovery Unit care. It took a few hours to get the approval, but God worked through the hearts of the ultimate decision maker.

I had surgery on April 25, and and filled with gratitude, my nerve pain is almost gone! I am almost pain free. I am walking 2-3 times daily, short distances that gradually increase each week. I won’t begin Physical therapy until after mid/the end of July.

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