Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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@ymv

@susanfalcon52 , thanks for the information. I’m going to discuss it with my doctor. Been on Tymlos a week and it’s causing a very bad headache. Did Evenity cost more than Tymlos? Do you have private insurance or Medicare with a supplement?

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I have Medicare with aarp supplement. At the time that I was taking Tymlos, my insurance didn’t cover. It would have been Part D, but they didn’t cover. That was because you give it to yourself at home. I’m on Evenity now and it’s covered because you go to infusion center or hospital.
Evenity not costing anything.

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@windyshores

@ymv are you taking a full dose? I would decrease the dose for a week or two and ramp back up. I had horrible headaches but even if you stay at a higher dose they go away in a few weeks for most, I have heard.

As for cost, Radius has a patient assistance program for Tymlos. Evenity does not though at times they refer you to foundation help.

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I always took the full dose.

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@susanfalcon52

I have Medicare with aarp supplement. At the time that I was taking Tymlos, my insurance didn’t cover. It would have been Part D, but they didn’t cover. That was because you give it to yourself at home. I’m on Evenity now and it’s covered because you go to infusion center or hospital.
Evenity not costing anything.

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I had asked my doctor about Evenity vs Tymlos due to cost. His reasoning for prescribing Tymlos is that it has been shown to assist in fracture healing. Since I have 2 delayed healing fractures it made sense to me. Although my part D plan made an exception to cover it, my copay is high. Hopefully, I will be out of the donut hole soon and it will cost less than $750/month.

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We have a medicare advantage plan - have a copay but our plan covers the bulk if the cost. You definitely need to check with your insurance company as not all medicare advantage plans are the same. Percentage of copays vary.

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@hsum4

Thanks for listening.

hsum4

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Anyone under a doctor's care for bone problems deserves to be listened to. Having any type of bone problem should have the attention of others who are experiencing doubt about taking all these medications. I heard that the doctors where I go are required to use these new medications on their patients even when the drugs are relatively new - not sure about this requirement???? My doctor handed me a lot of papers he printed out with all the trials for a particular drug. He thought this justified its use??

hsum4

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@susanfalcon52

I have Medicare with aarp supplement. At the time that I was taking Tymlos, my insurance didn’t cover. It would have been Part D, but they didn’t cover. That was because you give it to yourself at home. I’m on Evenity now and it’s covered because you go to infusion center or hospital.
Evenity not costing anything.

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Could you tell me what the infusion center or hospital charges Medicare?

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@laurensb

Could you tell me what the infusion center or hospital charges Medicare?

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I won’t know what the infusion center is charging Medicare until I get a statement from Medicare.
I will def look at the statement and post about it.

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@hsum4

Anyone under a doctor's care for bone problems deserves to be listened to. Having any type of bone problem should have the attention of others who are experiencing doubt about taking all these medications. I heard that the doctors where I go are required to use these new medications on their patients even when the drugs are relatively new - not sure about this requirement???? My doctor handed me a lot of papers he printed out with all the trials for a particular drug. He thought this justified its use??

hsum4

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I think it's important to look over all of the options and then ask the very important question: How many of your patients are taking Evenity? In my case my doctor has had quite a few patients on Evenity and felt confident in the drug. He had already seen good results.

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@birdie78

I think it's important to look over all of the options and then ask the very important question: How many of your patients are taking Evenity? In my case my doctor has had quite a few patients on Evenity and felt confident in the drug. He had already seen good results.

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I posted a separate discussion on Evenity after Tymlos (or after Forteo). I have gotten two opinions and neither will prescribe that sequence due to "lack of data" so I am curious how/where people are getting this prescribed.

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Thxs @windyshores, I wanted to ask you this question earlier, then lost my page, lol. Why they both were against you trying Evenity, for a maybe short time, after tymlos.

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