1. < Autoimmune Diseases

What is Jo1 re autoimmune & shortness of breath?

Posted by wnctiredoftired @wnctiredoftired, Jun 30, 2023

I have been struggling with shortness of breath with exertion for many years & it continues to worsen adding fatigue to my symptoms. At this time I'm seeing a Pulmonologist, Rheumatologist & a GI Doc hoping for answers. I am an otherwise healthy, strong, active 76 year old woman with a healthy BMI of 24. Has anyone else had this experience & what info can you share.

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Mentor
John, Volunteer Mentor | @johnbishop | Jun 30, 2023

Hello @wnctiredoftired, I'm assuming Jo1 is referring to Jo1-antisynthetase syndrome. I wasn't able to find a member who has posted about the condition but there is another discussion that might be helpful here:
--- Antisynthetase Syndrome: Anyone else?: https://connect.mayoclinic.org/discussion/anti-synthetase-syndrome/.

It's good that you have a team of specialists working with you and hopefully you will get some answers soon. While we wait for members to share their experience, I thought the following information might be helpful:
--- Antisynthetase Syndrome (AS): https://understandingmyositis.org/myositis/antisynthetase-syndrome/.

Did your doctors mention or think you might have Jo1-antisynthetase syndrome?

REPLY
1 reply
wnctiredoftired | @wnctiredoftired | Jun 30, 2023
In reply to @johnbishop "Hello @wnctiredoftired, I'm assuming Jo1 is referring to Jo1-antisynthetase syndrome. I wasn't able to find a..." + (show)
@johnbishop

Hello @wnctiredoftired, I'm assuming Jo1 is referring to Jo1-antisynthetase syndrome. I wasn't able to find a member who has posted about the condition but there is another discussion that might be helpful here:
--- Antisynthetase Syndrome: Anyone else?: https://connect.mayoclinic.org/discussion/anti-synthetase-syndrome/.

It's good that you have a team of specialists working with you and hopefully you will get some answers soon. While we wait for members to share their experience, I thought the following information might be helpful:
--- Antisynthetase Syndrome (AS): https://understandingmyositis.org/myositis/antisynthetase-syndrome/.

Did your doctors mention or think you might have Jo1-antisynthetase syndrome?

Jump to this post

I know next to nothing at this point. 🙁 Thank you for responding. I have complained about short of breath with exertion for many years, and the response has been to see a Cardiologist & a Pulmonologist. The tests have all come back normal. Until now, I had stopped seeking specialists because its been too hard to find any within our medical health providers. Yesterday was my first meeting with a Pulmonologist recommended by a friend from another medical health organization. As he reviewed my past labs etc, he saw something about positive Jo1 antibodies (all foreign to me), and is forwarding his concerns to a Rheumatologist I have seen only once. I will see him next week.
In the meantime, I've been researching online ... what I read sounds like scary unreal stuff. I know I have a high positive ANA, but I've never thought it was more than a nuisance.
Thank you for the links you sent.
Blessings, wnctiredoftired

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Jun 30, 2023
In reply to @wnctiredoftired "I know next to nothing at this point. :-( Thank you for responding. I have complained..." + (show)
@wnctiredoftired

I know next to nothing at this point. 🙁 Thank you for responding. I have complained about short of breath with exertion for many years, and the response has been to see a Cardiologist & a Pulmonologist. The tests have all come back normal. Until now, I had stopped seeking specialists because its been too hard to find any within our medical health providers. Yesterday was my first meeting with a Pulmonologist recommended by a friend from another medical health organization. As he reviewed my past labs etc, he saw something about positive Jo1 antibodies (all foreign to me), and is forwarding his concerns to a Rheumatologist I have seen only once. I will see him next week.
In the meantime, I've been researching online ... what I read sounds like scary unreal stuff. I know I have a high positive ANA, but I've never thought it was more than a nuisance.
Thank you for the links you sent.
Blessings, wnctiredoftired

Jump to this post

I saw another article that was kind of interesting and may be something you can discuss with your cardiologist or doctor.
--- Unmasking the varied causes of breathlessness and fatigue: https://www.health.harvard.edu/heart-health/unmasking-the-varied-causes-of-breathlessness-and-fatigue

REPLY
1 reply
wnctiredoftired | @wnctiredoftired | Jul 21, 2023
In reply to @johnbishop "I saw another article that was kind of interesting and may be something you can discuss..." + (show)
@johnbishop

I saw another article that was kind of interesting and may be something you can discuss with your cardiologist or doctor.
--- Unmasking the varied causes of breathlessness and fatigue: https://www.health.harvard.edu/heart-health/unmasking-the-varied-causes-of-breathlessness-and-fatigue

Jump to this post

Thank you for your responses. However, I have just learned from a retest that my Jo-1 is negative. The original test was a false positive, per my Rheumatologist. I'm thankful and fully agree since my symptoms do not match with Jo-1 problems. Yea!! 👍

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