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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Aug 26 12:21pm | Replies (395)
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@pamdg

I also am taking Jakafi. It helps immensely with PV side effects however I still need a phlebotomy every couple months. My hematocrit is kept at 42 or below.

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Replies to "I also am taking Jakafi. It helps immensely with PV side effects however I still need..."
draney | @draney | Jun 30, 2023

How many milligrams do you take a day? I'm on 10 mg twice a day

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nypara66 | @nypara66 | Jun 30, 2023

Is that medication expensive? Hydroxyurea is working for me so far and is only $8 for 30 pills. I was so grateful it was affordable being I’ll have to meet my deductible every year and more, for labs/phlebotomies/doc appointments. That is a newer medication and Hydroxyurea has been around a very long time.

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