1. < Osteoporosis & Bone Health

Prolia treatment for osteoporosis: What is your experience?

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

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sarahstuart Sarah Stuart McIlvain | @sarahstuart | Jun 25, 2023
In reply to @1956slk "How sad. My neighbor said the same thing. Scary these medicines are. My insurance won't cover..." + (show)
@1956slk

How sad. My neighbor said the same thing. Scary these medicines are. My insurance won't cover it anyway. Sorry to hear about your Mom.

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Thank you for your concern. My concern is that she was over 100 y.o. when she got the Prolia and was on a soft diet. My sister, a clinical dietician, got involved. My job was to supply excellent chocolates for dessert: no nuts, no caramel.

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trathfon62 | @trathfon62 | Jun 25, 2023
In reply to @sarahstuart "My mother was on Prolia and her only side effect was loosing all of her teeth,..." + (show)
@sarahstuart

My mother was on Prolia and her only side effect was loosing all of her teeth, some of them being expensive as many were artificial teeth. She had extensive dental work done over the decades. She was 101 when the doctor ordered Prolia for her.

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I’m so sorry to hear this. I am losing faith in the medical community.

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Christine | @thisoldewe | Jun 26, 2023

Yes, I take Prolia: one shot every 6 months. My experience is that there has been NO experience: no side effects.
I go for a bone density tomorrow, so perhaps I will know the benefits.
I have a friend who has been on Prolia, for some time, and same absence of side effects.
So onward! All the best as you make your decisions.

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2 replies
barbjo | @barbjo | Jun 26, 2023
In reply to @gulfcoastwoman "I’ve been on Prolia for 3 years with no side effects. My spine improved & is..." + (show)
@gulfcoastwoman

I’ve been on Prolia for 3 years with no side effects. My spine improved & is now in the normal range. I’ve continued to lose bone mass in my hips & they are -3.2.
My Dr recommends Evenity but I am reluctant. Tymlos & Forteo are not covered by Medicare & my copay under my prescription plan is over $1k a month. I don’t qualify for assistance. I’ve added more exercise ( weight vest & other stuff) & am staying on Prolia for now. I’m 71 & fit. Very active.

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My copay for Forteo with Medicare and My prescription plan dropped after two months from 1000 range to $ 240 monthly the rest of year. A couple of other prescriptions I take dropped to almost free. I’m planning that January 2024 I’ll start over . Check it out. I was very worried about many things about Forteo, but it is going great.

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1 reply
leeosteo | @leeosteo | Jun 26, 2023
In reply to @barbjo "My copay for Forteo with Medicare and My prescription plan dropped after two months from 1000..." + (show)
@barbjo

My copay for Forteo with Medicare and My prescription plan dropped after two months from 1000 range to $ 240 monthly the rest of year. A couple of other prescriptions I take dropped to almost free. I’m planning that January 2024 I’ll start over . Check it out. I was very worried about many things about Forteo, but it is going great.

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barbjo, do you have traditional medicare (vs medicare advantage)? Do you have Part D prescription plan? If so, with whom? I may be going on Forteo and was curious.

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barbjo | @barbjo | Jun 26, 2023

I have regular Medicare with Blue Cross prescription Part D. It was a pleasant surprise not to pay that big copay every month.

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ginikast | @ginikast | Jun 29, 2023
In reply to @smtamt "@mabel343 Evista treatment is back dated. Have you not gone with Prolia?" + (show)
@smtamt

@mabel343 Evista treatment is back dated. Have you not gone with Prolia?

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what does back dated mean?

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salisbury2491 | @salisbury2491 | Jun 30, 2023

I am really concerned about being on Prolia. Been on it 3 1/2 years, very little improvement. I am 87 but always had good balance and very active. I am now having a lot of back pain and my balance seems off at times. I was not told once you start Prolia you cannot go off it. I wish I had never went on it.

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3 replies
windyshores | @windyshores | Jun 30, 2023
In reply to @salisbury2491 "I am really concerned about being on Prolia. Been on it 3 1/2 years, very little..." + (show)
@salisbury2491

I am really concerned about being on Prolia. Been on it 3 1/2 years, very little improvement. I am 87 but always had good balance and very active. I am now having a lot of back pain and my balance seems off at times. I was not told once you start Prolia you cannot go off it. I wish I had never went on it.

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You can switch to a bisphosphonate, according to McCormick's new book and my doc.

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1 reply
canadatx | @canadatx | Jul 1, 2023
In reply to @salisbury2491 "I am really concerned about being on Prolia. Been on it 3 1/2 years, very little..." + (show)
@salisbury2491

I am really concerned about being on Prolia. Been on it 3 1/2 years, very little improvement. I am 87 but always had good balance and very active. I am now having a lot of back pain and my balance seems off at times. I was not told once you start Prolia you cannot go off it. I wish I had never went on it.

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I was told you can switch to another bone density medication if Prolia caused side effects
Have you talked to your doctor? Did they offer another drug for you to take instead?

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