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I feel as if not a single doctor I go to is listening to me
For the past 3 years I have had non stop pain in my lower right quadrant below my ribs with pain sometimes in my right hip, I have been tested for liver disease,kidney disease,had an endoscopy and a colonoscopy, with a Hida scan, and ultrasound results being liver enzymes came back perfectly fine, a 90 EFGR for African american but a 70 EFGR for non African Americans(which worries me since they changed the way they measure) but was told my kidneys are fine, my endoscopy and colonoscopy game back normal, my Hida scan showed sludge in my gallbladder but that everything moved normally, the ultrasound I had showed a small polyp but I was also told there is nothing to worry about (they haven't tested for it in 3 years since) I tell each doctor I go to all of these things with charts and test results and each time they take blood work and run a full panel then proceed to schedule me our for another 3 months. This pain I'm having seems to be affected whether I eat healthy or not so healthy, someday the pain is so minimal it's like a breath of fresh air and I feel amazing only for me to eat something, or drink ANYTHING and the pain come right back, i have gotten so used to the pain that i just live wiith it and roll with it, im just sick of living this way, I have everything from an internal medicine doctor, gastrointestinal doctor and a primary care. The things that worry me are some days I will have itchy skin all over and the next I won't have any, I've had them look at my nails which look like Terry nails as a clue as to what could be going on and I get the same old "they look fine" this while situation has caused me to spin into a depression I have to keep digging myself out of for the sake of my family. I just want someone to do more than blood tests only and help me instead of nod thier head for once. I have attached my last blood work results for if anyone has any advice thank you in advance.
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Hello @chall10, Welcome to Connect. I know it must be terrible having to deal with the pain for over 3 years talking with different doctors and having multiple tests and no relief or diagnosis. While we wait for members who may have experience with similar symptoms here is an article that may provide some helpful information.
--- 19 Causes of Pain in the Lower Right Abdomen Near the Hip Bone: https://www.healthline.com/health/pain-in-lower-right-abdomen-near-hip-bone.
Have you thought about seeking a second opinion or help at a teaching hospital or major health facility like Mayo Clinic?
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1 ReactionIf you don't feel comfortable with your doctor request a different one or change practices your going to. There is no excuse for a doctor to ignore you. That is the one person who should have your best interest looking at alternatives to help you with your pain. Are you going to a pain doctor? There are devices available that you can do trials with to see how you react to them for relief.
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1 ReactionI hear you, I see you and I understand too well.
I wish I could help
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3 ReactionsThank you for the articles yes I have gone to 4 different doctors for opinions each specialized in areas I'm worried about yet I get the same result of Blood work, wait 3 months and blood work again
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1 ReactionI have similar circumstances in that all my tests are fine but I have Conns disease which wasn't diagnosed for years and put down to anxiety.
I don't trust Drs!
I think you probably need to do some further research.
Some of your blood tests are abnormal...why?
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2 ReactionsResearch for three years is all o have done but I need referrals in order to even do tests at certain facilities which doctors will not give me, the only actual abnormal I have would be my anion gap which I was told not to worry about it the other abnormalities are off by .1 each it seems.
It must be incredibly frustrating for you!
I'm sorry you have alot of pain some days and hope you get some answers soon.
My advise from experience having had ACNES and been surgically cured of it is to go on YouTube and watch the videos on the CARNETT test and videos on ACNES. You need to become as knowledgeable as possible. It’s all there just google Carnett test and ACNES.
Jeff
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1 ReactionHi @chall10, chronic pain is draining. I hope you can get a diagnosis.
You mentioned that you are itchy all over some days. Have you been tested for any autoimmune disorders with inflammation markers taken - like CRP and ESR? The full panel workup may include them so I apologize if my question is redundant.
Itchiness can be a sign of inflammation. I had an autoimmune disorder and had a terribly itchy torso for two weeks, no rash. Have you been tested for vitamin deficiencies as well?
I wish you the best.
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4 ReactionsACNES is my next go to for talking with my doctor since nothing else seems to work thank you for the advice I really do appreciate it!
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