Has anyone been using Tymlos?
Has anyone been using Tymlos? I received devastating news that my bone density score is 4.6, much worse than my age of 72. Recommendation is Tymlos.
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My specialty pharmacy said Tymlos make bones more brittle. They had to by law read an explanation of the drug from the Tymlos company to me. I heard all anabolics and all bisphosphonates make the bones more brittle but less prone to fragility fractures. So if you have an accident and break a bone it can be harder to heal and some people say you may never heal.
Basically we can’t break a bone from an accident now.
I asked for the smallest needle size when ordering it and the pharmacy gave it to me.
Do you just increase one click per day?
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1 ReactionWhere is that on the website ?
You are doing two months of Tymlos and switching to evenity?
I did Tymlos for four months and switched to Evenity. With Tymlos, it was the cost factor.
I'm sure it's not. It was something the Tymlos nurse mentioned when I told her early on that I was hesitant about injecting into my stomach. FWIW-- I only tried my thigh twice. My stomach is easier, and I have (mostly) figured out how to make it not hurt.
Tymlos is expensive / I am doing it through my insurance and the other part manufacture savings program. I took me weeks to learn the way through the maze.
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2 Reactions@cloud60 everyone is different. You may do just fine with Tymlos and therefore could go up one click a day. Others may benefit from a slower ramp up. I never got to the full 8 clicks (except for a few days) but that should be the goal and most end up doing full dose.
I have also been told that thighs are okay but since studies were done with stomach, many docs, nurses and pharmacists will say tummy only. I stuck to tummy, at least 2" from the navel. I know from my kid's type 1 diabetes/insulin shots that absorption is best in the tummy.
@susanfalcon52 no sure this applied for you.....For those 65 and over, Radius Assist can provide free Tymlos if you meet income guidelines. They have changed how they provide this info. I had a personal rep at Together with Tymlos who guided me and now it seems you go on the Radius website to find the paperwork to apply for aid.
I hear you I was devastated in February with -4.7 lumbar and I am 60. I have slowly come out of the shock and first started bisphosphonates that didn’t work bc they bothered my stomach and now on Tymlos. I hope it goes well for us all. One thing I am learning is the more agile things you do the better. You will find your path - we all are.
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