Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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@ymv

I was on Fosamax for some years then Reclast for 5 years. Was drug free for quite a few years until Dexa in 2021 showed severe osteoporosis. Started on Prolia. Between Jan 2022 and April 2023, I had 3 fractures due to osteoporosis each requiring surgery. Doctor said Prolia not effective and stated Tymlos last week. When I asked about treatment after Tymlos was told “will discuss later “. Did anyone take Tymlos prior to Evenity?

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I did four months of Tymlos, then went on Evenity. Four months only due to the cost.
No problems with Tymlos.

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@susanfalcon52

I did four months of Tymlos, then went on Evenity. Four months only due to the cost.
No problems with Tymlos.

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@susanfalcon52 , thanks for the information. I’m going to discuss it with my doctor. Been on Tymlos a week and it’s causing a very bad headache. Did Evenity cost more than Tymlos? Do you have private insurance or Medicare with a supplement?

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Does Medicare pay for CTX and P1NP tests?

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@shula

Does Medicare pay for CTX and P1NP tests?

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@shula my Medicare Advantage plan paid and I assume Medicare will if ordered by an MD or NP. Can you ask insurance?

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@ymv

@susanfalcon52 , thanks for the information. I’m going to discuss it with my doctor. Been on Tymlos a week and it’s causing a very bad headache. Did Evenity cost more than Tymlos? Do you have private insurance or Medicare with a supplement?

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@ymv are you taking a full dose? I would decrease the dose for a week or two and ramp back up. I had horrible headaches but even if you stay at a higher dose they go away in a few weeks for most, I have heard.

As for cost, Radius has a patient assistance program for Tymlos. Evenity does not though at times they refer you to foundation help.

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@shula

Does Medicare pay for CTX and P1NP tests?

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@shula , I have traditional Medicare with a supplement and my tests were covered

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@ymv

@susanfalcon52 , thanks for the information. I’m going to discuss it with my doctor. Been on Tymlos a week and it’s causing a very bad headache. Did Evenity cost more than Tymlos? Do you have private insurance or Medicare with a supplement?

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I have Medicare with aarp supplement. At the time that I was taking Tymlos, my insurance didn’t cover. It would have been Part D, but they didn’t cover. That was because you give it to yourself at home. I’m on Evenity now and it’s covered because you go to infusion center or hospital.
Evenity not costing anything.

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@windyshores

@ymv are you taking a full dose? I would decrease the dose for a week or two and ramp back up. I had horrible headaches but even if you stay at a higher dose they go away in a few weeks for most, I have heard.

As for cost, Radius has a patient assistance program for Tymlos. Evenity does not though at times they refer you to foundation help.

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I always took the full dose.

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@susanfalcon52

I have Medicare with aarp supplement. At the time that I was taking Tymlos, my insurance didn’t cover. It would have been Part D, but they didn’t cover. That was because you give it to yourself at home. I’m on Evenity now and it’s covered because you go to infusion center or hospital.
Evenity not costing anything.

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I had asked my doctor about Evenity vs Tymlos due to cost. His reasoning for prescribing Tymlos is that it has been shown to assist in fracture healing. Since I have 2 delayed healing fractures it made sense to me. Although my part D plan made an exception to cover it, my copay is high. Hopefully, I will be out of the donut hole soon and it will cost less than $750/month.

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We have a medicare advantage plan - have a copay but our plan covers the bulk if the cost. You definitely need to check with your insurance company as not all medicare advantage plans are the same. Percentage of copays vary.

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