I guess I don't understand why people looking for alternative cancer treatments want to be on a site for conventional Western treatment. Mayo docs have certainly been out front in empirically studying and promoting healthy exercise and food for ET patients. More attention to quality of life is great.

But folks who get on here and reject conventional drug treatments as if those of us taking it were utter dupes who are uglifying ourselves needlessly with HU side effects don't offer much in the way of support for fellow patients.

I have also seen MANY people on support group sites posing as patients. They'll pretend they're taking some "natural" cure that has brought platelets down and made them look 20 years younger to boot. And when you dig a little, you find out they're actually selling this stuff.

Sorry to be negative.