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Seeking other liver transplant pts out of state from MAYO JAX

Transplants | Last Active: Jul 24, 2023 | Replies (22)
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@loribmt

Hello @jshirley, I know you’re focused on whether or not the liver transplant is a possibility. With your latest health concern I certainly hope that this will be a possibility for you too. As an RN you dedicated your life to helping other people so now it’s your turn to receive a gift of life.

I’m not sure if you’ve looked into these discussions in the forum related to Cholangiocarcinoma but I found a few conversations that might be relevant for you and where you can meet other members who have experience with this rare form of cancer.
Cholangiocarcinoma and proton and photon beam radiation

https://connect.mayoclinic.org/discussion/cholangiocarcinoma-2/ with member @edie78t
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Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this? https://connect.mayoclinic.org/discussion/cholangiocarcinoma-bile-duct-cancer-anyone-else-dealing-with-this/
@tball3748 @edie78t

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Diagnosed with cholangiocarcinoma, can this be treated?
https://connect.mayoclinic.org/discussion/diagnosed-with-cholangiocarcinoma-can-this-be-treated/
Posted by @suchita90 @gstoreydothan @jalewallen74

I am confident that you’re in the best hands possible at Mayo…being a little biased. But they gave me a new life and it remains a place of hope! Let me know what you find out, ok?

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Replies to "Hello @jshirley, I know you’re focused on whether or not the liver transplant is a possibility...."
jshirley | @jshirley | Jun 27, 2023

Thanks Lori. I needed that and have reviewed each link.
I think knowing the diagnosis and its aggressiveness and the statistics with likely outcome, I want to start this fight. I have too much to live for to give up.
The docs I have in my area have been Frank with me which I like. They have expedited procedures and even my Charlotte Transplant team have informed me to get into a program ASAP. This was diagnosed in April and still I have no plan of treatment.
I have researched and Mayo has best outcomes for my situation “if caught and treated early” per Mayo statement.
I just want to make sure I am in the right group as oncology is who consulted with me. I reached out to the Transplant team and they knew noting about my case. I guess there lyes my frustration.
But I am letting it go and know Gods will is in my life and has always been faithful to me.

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