← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@kelliw

Hi Everyone-I had my follow-up to my echo this morning, and everything is still looking great! We talked about my dr.'s phone call regarding the "protocol" that said I need to stop taking Camzyos for a month and how he said no I want to keep her on 2.5 mg. Don't do this to her! She is feeling great! They said OK! They also said a pharmacist cannot override a doctor's orders.
So I talked to the specialty pharmacist today and she sent my prescription. It will be here Wednesday. I have 6 pills left, so will be just fine! Sooo if this happens to you, your doctor can override the protocol for you. I will have another echo next month, not in 3 months, to make sure everything is still fine. Hallelujah! 🙂

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Replies to "Hi Everyone-I had my follow-up to my echo this morning, and everything is still looking great!..."

I am SO very happy to get your report today! What a great doctor! I bet you are feeling much relieved like a weight has been taken off your shoulders. Now you can go on your girls trip and not have this hanging over you like a dark cloud! Thank you for letting us know how it went @kelliw! Blessings abundant to you 🙂