Hi nusscass,
I live in SC and have cirrhosis from Hemochromatosis and Polycythemia Vera likely with NASH as well. Who knows…. My GI doc is old school and retiring soon but says it doesn’t matter how you got here, but here you are.

Anyway, I have also recently but diagnosed with Cholangiocarcinoma (NOT GOOD)!! And I had been with the Atrium Health program for the last 13 yrs., but with this new complication, they can’t perform transplant.
I was sent to MUSC in SC and they evaluated and once we left, have not heard a single thing from them.
Came to Mayo JAX, and Dr. Majeed with Oncology met with me and my wife. That day they did MRI, MRCP, Labs, and then CT of chest the next morning.
He has presented me to tumor board stating the Transplant surgeons also attend that.
We are still waiting on a response if I will qualify for their program as they are one of the few programs to transplant someone with Cholangiocarcinoma.
We were told I would have to stay there 5 weeks for chemo and twice per day Radiation, if I am allowed to enter the program.
I have looked into the places you recommended as I am trying to be proactive in case they call and say come back.
BTW… I am also a long time RN as is my wife.

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