1. < Osteoporosis & Bone Health

Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

windyshores | @windyshores | Jun 25, 2023
In reply to @leslie2121 "Right- I keep reading about the very long half life of Reclast- that it stays in..." + (show)
@leslie2121

Right- I keep reading about the very long half life of Reclast- that it stays in your body virtually forever.
I read one explanation that as it’s deposited in your bones, the osteoclasts do their thing ( breaking down bone) thus releasing the Reclast.
So I’m wondering why we’re advised to take it every year for 3-5 years???

I also read another study that said a half dose, as well as every 18-24 months is as effective as usual administration.

* I’d post a link but the studies don’t allow it somehow. If interested I can try to post that.

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@leslie2121 I have also read a half dose is just as effective. My doc is nervous about me and is giving me a 20% dose when I finish Tymlos next month. After 3 months I am supposed to call to tell him what dose I want next. Full dose is 5mg so he is giving me 1mg.

REPLY
susanfalcon52 | @susanfalcon52 | Jun 25, 2023
In reply to @ymv "I was on Fosamax for some years then Reclast for 5 years. Was drug free for..." + (show)
@ymv

I was on Fosamax for some years then Reclast for 5 years. Was drug free for quite a few years until Dexa in 2021 showed severe osteoporosis. Started on Prolia. Between Jan 2022 and April 2023, I had 3 fractures due to osteoporosis each requiring surgery. Doctor said Prolia not effective and stated Tymlos last week. When I asked about treatment after Tymlos was told “will discuss later “. Did anyone take Tymlos prior to Evenity?

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I did four months of Tymlos, then went on Evenity. Four months only due to the cost.
No problems with Tymlos.

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1 reply
ymv | @ymv | Jun 26, 2023
In reply to @susanfalcon52 "I did four months of Tymlos, then went on Evenity. Four months only due to the..." + (show)
@susanfalcon52

I did four months of Tymlos, then went on Evenity. Four months only due to the cost.
No problems with Tymlos.

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@susanfalcon52 , thanks for the information. I’m going to discuss it with my doctor. Been on Tymlos a week and it’s causing a very bad headache. Did Evenity cost more than Tymlos? Do you have private insurance or Medicare with a supplement?

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2 replies
shula | @shula | Jun 26, 2023

Does Medicare pay for CTX and P1NP tests?

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3 replies
egglaw | @egglaw | Jun 26, 2023
In reply to @shula "Does Medicare pay for CTX and P1NP tests?" + (show)
@shula

Does Medicare pay for CTX and P1NP tests?

Jump to this post

I will be in a client meeting today, Monday June 26.

I will have limited email access during this time; however, please feel free to leave an email and I will be back to you as soon as I can.
If you need assistance please phone our offices at 518.464.1300 and reach Rayanne@ (rsheehan@rwgmlaw.com) x409.

--_000_1e479f62a67b46d1a5969971d5a29ceaRWGMEXCH19rwmattyslocal_
Content-Type: text/html; charset="us-ascii"
Content-Transfer-Encoding: quoted-printable

  I will be in a client meeting today,
Monday June 26.
 
I will  have limited email access during this time; however, please feel free to leave an email and I will be back to you as soon as I can.
If you need assistance please phone our offices at 518.464.1300 and reach Rayanne@ (rsheehan@rwgmlaw.com) x409.

--_000_1e479f62a67b46d1a5969971d5a29ceaRWGMEXCH19rwmattyslocal_--

REPLY
windyshores | @windyshores | Jun 26, 2023
In reply to @shula "Does Medicare pay for CTX and P1NP tests?" + (show)
@shula

Does Medicare pay for CTX and P1NP tests?

Jump to this post

@shula my Medicare Advantage plan paid and I assume Medicare will if ordered by an MD or NP. Can you ask insurance?

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1 reply
windyshores | @windyshores | Jun 26, 2023
In reply to @ymv "@susanfalcon52 , thanks for the information. I’m going to discuss it with my doctor. Been on..." + (show)
@ymv

@susanfalcon52 , thanks for the information. I’m going to discuss it with my doctor. Been on Tymlos a week and it’s causing a very bad headache. Did Evenity cost more than Tymlos? Do you have private insurance or Medicare with a supplement?

Jump to this post

@ymv are you taking a full dose? I would decrease the dose for a week or two and ramp back up. I had horrible headaches but even if you stay at a higher dose they go away in a few weeks for most, I have heard.

As for cost, Radius has a patient assistance program for Tymlos. Evenity does not though at times they refer you to foundation help.

REPLY
2 replies
egglaw | @egglaw | Jun 26, 2023
In reply to @windyshores "@shula my Medicare Advantage plan paid and I assume Medicare will if ordered by an MD..." + (show)
@windyshores

@shula my Medicare Advantage plan paid and I assume Medicare will if ordered by an MD or NP. Can you ask insurance?

Jump to this post

I will be in a client meeting today, Monday June 26.

I will have limited email access during this time; however, please feel free to leave an email and I will be back to you as soon as I can.
If you need assistance please phone our offices at 518.464.1300 and reach Rayanne@ (rsheehan@rwgmlaw.com) x409.

--_000_e8fe62bc91a3418ab241ad13f8589af7RWGMEXCH19rwmattyslocal_
Content-Type: text/html; charset="us-ascii"
Content-Transfer-Encoding: quoted-printable

  I will be in a client meeting today,
Monday June 26.
 
I will  have limited email access during this time; however, please feel free to leave an email and I will be back to you as soon as I can.
If you need assistance please phone our offices at 518.464.1300 and reach Rayanne@ (rsheehan@rwgmlaw.com) x409.

--_000_e8fe62bc91a3418ab241ad13f8589af7RWGMEXCH19rwmattyslocal_--

REPLY
egglaw | @egglaw | Jun 26, 2023
In reply to @windyshores "@ymv are you taking a full dose? I would decrease the dose for a week or..." + (show)
@windyshores

@ymv are you taking a full dose? I would decrease the dose for a week or two and ramp back up. I had horrible headaches but even if you stay at a higher dose they go away in a few weeks for most, I have heard.

As for cost, Radius has a patient assistance program for Tymlos. Evenity does not though at times they refer you to foundation help.

Jump to this post

I will be in a client meeting today, Monday June 26.

I will have limited email access during this time; however, please feel free to leave an email and I will be back to you as soon as I can.
If you need assistance please phone our offices at 518.464.1300 and reach Rayanne@ (rsheehan@rwgmlaw.com) x409.

--_000_3c87836a4d664d62b9885942d5d9fec5RWGMEXCH19rwmattyslocal_
Content-Type: text/html; charset="us-ascii"
Content-Transfer-Encoding: quoted-printable

  I will be in a client meeting today,
Monday June 26.
 
I will  have limited email access during this time; however, please feel free to leave an email and I will be back to you as soon as I can.
If you need assistance please phone our offices at 518.464.1300 and reach Rayanne@ (rsheehan@rwgmlaw.com) x409.

--_000_3c87836a4d664d62b9885942d5d9fec5RWGMEXCH19rwmattyslocal_--

REPLY
ymv | @ymv | Jun 27, 2023
In reply to @shula "Does Medicare pay for CTX and P1NP tests?" + (show)
@shula

Does Medicare pay for CTX and P1NP tests?

Jump to this post

@shula , I have traditional Medicare with a supplement and my tests were covered

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