Adenocarcinoma Robotic RLL Lobectomy: Does age affect outcome?

Posted by bbtn @bbtn, May 16, 2023

Hello all,
I've been diagnosed with NSCLC adenocarcinoma. The nodule is approximately 2.5 cm I'm told. I'm scheduled for a right lower lobectomy next week on the 26th at Vanderbilt. I'm really getting crazy anxiety about this and would love some input from people who have had this procedure. I'm 64 and wondering if my age is going to affect the outcome.
Any advice is appreciated
Bunnie

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I am sorry to hear about your continued pain. Instead of going back to the surgeon you might try seeing your regular doctor; sometimes they can help with pain issues. Give yourself some time to heal. I am now 6 months past my robotic surgery; I am 78. Only recently have I begun to feel normal.

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My robotic lobectomy was 8 weeks ago. While it has slowly improved, I still have some nerve pain. It is aggravated by lifting or doing a lot. I take gabepentin and Tylenol or Advil. Also used aspercreme roll on. Bra still uncomfortable! I did buy a few bigger stretch ones which help. Check with your Doctor about swimming. Beach sounds great.

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Bunnie, hope your surgery went well. I think I mentioned that I had a sementectomy on Mar 22. I’m 78 and otherwise healthy. Some initial pain and numbness of skin, but all symptoms gone now. Best of lyck and a hug to you.

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Bunny, I had a lobectomy, left upper lobe in July 2020, I was 69 at the time. I know there's two procedures, one is video assissted which greatly reduces the amount of invasivness of the surgery. I don't know if you're going to have it done this way, not all hospitals use this technique but I would highly recommend this because it makes a huge difference. I recovered physically quite well and gradually regained some strength again. I won't tell you that you're exactly the same person after going through this treatment but for me it was more mental stress that I went through but I think that's fairly normal. I've heard many people in our age group did very well with this type of surgery so don't fear, I'm sure you're in good hands, they also don't need to keep you in the hospital too long, about 3 days and then you can go home. I wish you good luck and a safe and healthy recovery.

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@dezines

I had an upper right lobectomy 7 weeks ago, with the Robot and the Tramadol was not working so they switched me to Oxycodone, which just too the edge off the nerve pain. Last week I started on the Pregabalin 25 mg., first week only 2 a day, which seemed to be helping but then not so much ( I think my doctor put me on low dose due to many allergic reactions) the one reaction I had was swelling of feet and ankles, which didn't seem to be an issue, so now taking 2 during the day and another 2 at nighttime. That had helped for a few days and now I am not finding much relief. Surgeon mentioned every nerve was nicked during surgery and wondering who else may have experienced this much pain. Was hope after 2 days after surgery and was shocked by the large scar and swelling above it. So it was more than the 3 or 4 holes from the robot. Still swollen even after it leaked one night for 4 hours straight. Also had a thorosentisis; but in another area (SO ADD ONE MORE WOUND). The scab on that one has crusted and I am trying not to touch it. My biggest concern is the large incision and the lump above (still swollen) was told it will eventually go down. Wondering when that may be, as wearing bras or anything that touches that site is painful. Due to having emphysema I have been basically a Shut-IN all through COVID. I realize at my age (75) I am not going to heal as quickly as many of those that are younger. I've always taken care of my home and now the smallest tasks have become overwhelmingly hard to do and leave me in more pain.
My spouse is doing is best but he doesn't know how to cook so I have had to fend for myself.
I am writing this and realizing how depressed I am, as we were going to try to take a trip to get away for a week. But I am afraid of these wounds if I am on a beach, does anyone know if both beach and a 9 hour drive may be too difficult for me now? I don't want to make my spouse have to be stuck home as we are both tired of being home.
Anyone that can give me advice, I would greatly appreciate hearing from you. I realize it might be call your surgeon; but he seems dismissive of my concerns. Final visit after surgery only went by x-ray and never looked at swelling. He's in and out so no time to ask questions, so later sent photo to them on portal of how swollen I was.
My first time here! Sorry if this was lengthy just looking for advice from others that have similar experiences.
Thank you

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Oh @dezines, I feel for you. This sounds like such a tough time. I don't blame you for being concerned about the swelling, and certainly if the skin is red or warm. If it gets worse, be sure to reach back out to the surgeon's office, and sometimes a triage nurse can be helpful, or even your primary care provider may be able to help. They may be able to confirm if there is reason to be concerned.
Most times people that offer to help really do mean it. Is there anyone else that can help with the house or a little cooking?
Sometimes a chance of scenery can be refreshing and can be a big help to your mental state. Would it be possible to try a mini-trip, just an overnight, before taking the longer trip to the beach?

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@lls8000

Oh @dezines, I feel for you. This sounds like such a tough time. I don't blame you for being concerned about the swelling, and certainly if the skin is red or warm. If it gets worse, be sure to reach back out to the surgeon's office, and sometimes a triage nurse can be helpful, or even your primary care provider may be able to help. They may be able to confirm if there is reason to be concerned.
Most times people that offer to help really do mean it. Is there anyone else that can help with the house or a little cooking?
Sometimes a chance of scenery can be refreshing and can be a big help to your mental state. Would it be possible to try a mini-trip, just an overnight, before taking the longer trip to the beach?

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Thank you Lisa, for reaching out to me. My husband (also my care giver) has been coughing for the past few days and he finally went to the ER today, after trying to get him to see his Doctor, I ended up being the care giver and yesterday I had a sore throat. Once his coughing began he slept in another room but he would be downstairs with me and touching remotes, etc. My last visit with my PT nurse was yesterday and she took his temperature and it was a little above 101 degrees. At that point she told me to also wear a mask. Something I hadn't done as it's difficult for me to breathe with it. He just returned from the ER and was diagnosed with Viral Bronchitis not sure yet what prescriptions they gave him. Besides concerns for him, I now am wondering how this could impact me? How long will he be contagious? I imagine due to his illness there won't be any trips. We'll wait and see.
I really appreciate your empathy, during these trying times. Hope to hear back regarding my concerns. Thank you.

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@debhol

My robotic lobectomy was 8 weeks ago. While it has slowly improved, I still have some nerve pain. It is aggravated by lifting or doing a lot. I take gabepentin and Tylenol or Advil. Also used aspercreme roll on. Bra still uncomfortable! I did buy a few bigger stretch ones which help. Check with your Doctor about swimming. Beach sounds great.

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to @debhol
Thank you for sharing we seem to be in the same boat as far as when we had our lobectomy and doing anything like bending or trying to clean my home I can only last so long and the pain is so bad I have to decide if it's worth it. Yet, dust is not a friend when you are trying to heal from this. I have a fairly large home and have never had anyone clean for me; nor cook, I was proud of how clean it had been up until about a year ago when I began to let things get out of control, as far as not putting things away. My husband tried to help me clean just my office and he was winded before me. Turns out he ended up in ER today for viral bronchitis. Although, that day we didn't realize he was ill. As for bras I also purchased ones that you pull up all elastic but large enough not to directly touch my wounds (especially one that is still swollen). However, can't wait to take them off. As for beach or short vacation, it may not happen now that my husband has become ill. He is coughing so hard and we are waiting for the meds to kick in and hoping in a few days he may get some relief.

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@thieschafer

I am sorry to hear about your continued pain. Instead of going back to the surgeon you might try seeing your regular doctor; sometimes they can help with pain issues. Give yourself some time to heal. I am now 6 months past my robotic surgery; I am 78. Only recently have I begun to feel normal.

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to: @thieschafer
Hi and thank you for letting me know that it may take that long to heal. My regular doctor was unavailable to see last week and coming week she is away, and her schedule is full until mid July. Apparently, I made need a root canal and I also have a second appointment for another colonoscopy, one done a few weeks prior to my lobectomy, could only remove 2 1/2 pre-cancerous polyps; so that other half or whatever they hadn't got out is going to be hopefully removed. Just so many things are overwhelming right now. Spouse came down with Viral Bronchitis and went to ER early this morning and spent most of the day there. Worrisome for both him and myself, as I need to mask when around him. Hence he sleeps in another room now. But we are together mostly in our family room. Just too many health related problems to deal with at one time as I am trying to heal from this lobectomy.

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@dezines

to: @thieschafer
Hi and thank you for letting me know that it may take that long to heal. My regular doctor was unavailable to see last week and coming week she is away, and her schedule is full until mid July. Apparently, I made need a root canal and I also have a second appointment for another colonoscopy, one done a few weeks prior to my lobectomy, could only remove 2 1/2 pre-cancerous polyps; so that other half or whatever they hadn't got out is going to be hopefully removed. Just so many things are overwhelming right now. Spouse came down with Viral Bronchitis and went to ER early this morning and spent most of the day there. Worrisome for both him and myself, as I need to mask when around him. Hence he sleeps in another room now. But we are together mostly in our family room. Just too many health related problems to deal with at one time as I am trying to heal from this lobectomy.

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Sounds like you are having a rough time. Make the appointment for mid-July and find other ways to manage pain. It never rains but it pours. Best of luck with the colonoscopy and the root canal will be over in half an hour. I had one of those last year; not fun. Hoping things get better soon.

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@flusshund

RATS is the best. I had four small incisions and almost can't find one of them anymore. As to the surgery, at least you're a woman. My wife and I had a consultation with my surgeon before the surgery. At one point, he turned to my wife and told her to be prepared because I would be depressed after the surgery for three reasons,
1. He's young. He said most people requiring this surgery were 20 years older.
2. He's a man. And we men don't emotionally handle such things as you women (talking to my wife), and
3. He's an engineer, and they tend to overthink things.
At that point, I replied, "Wheen, have I eeeever overthought anything?" Then we all had a good laugh, which my wife and I kinda needed about then.

You may have guessed I'm a pretty positive person, but I still had a bit of anxiety before. Sounds like you're doing fine and you're right. It'll be good to get rid of that thing. Plus, they'll be able to get a good look at it and definitively tell you what type of cancer you have which will determine future treatments. I have the EGFR mutation, so I take a small pill once a day. That's it!

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Thank you for sharing your experiences. I wish I could have had surgery. My NSC lung cancer is too prevalent in my lungs and my only option is chemotherapy and immunotherapy and probably for the rest of my days. Fortunately Mayo took me on as a patient and I’ve been in one clinical trial and will probably be in another this summer. Your oncologist’s words made me chuckle. He sounds really thoughtful. Bless you with continued good health.

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