AIP diet for autoimmune illnesses

Posted by bayhorse @bayhorse, Oct 14, 2022

Hi, all: I have celiac disease, ulcerative colitis, and was recently diagnosed with lupus. A nutritionist at my pc's office wants me to go on the Autoimmune Protocol diet, which basically eliminates everything except vegetables (though no nightshades), fruit and animal protein. In other words, no legumes, grains, dairy, eggs (and of course none of the usual "baddies" like alcohol and sugar). The aim is to eliminate lectin-containing foods, which nutritionist says can cause inflammation. I weigh 89 pounds, and cannot imagine how I am supposed to sustain this diet without losing weight. If any of you have done the AIP diet, please let me know how you managed. Thanks!

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@bayhorse

Thanks to all who responded to my questions about AIP diet. A BIG problem where this diet is concerned is that in addition to my 3 autoimmune illnesses (celiac spruce, UC, lupus), I also have congestive heart failure. So I absolutely have to watch fats and salt. And unfortunately, most of the high-calorie items on AIP (coconut products, bacon, chicken fat, meat fat, red meat) are forbidden to me! So I am left with only the leaner AIP allowables. The dietician who proposed I go on AIP encouraged me to eat lots of olive oil and avocado oil; I use both to cook with, but I have no gall bladder, so I don't deal with lots of oil/fats well anyhow. I did not get much guidance from her after I brought up my heart-related (and gall bladder-less limitations). Hence my hollering for help to all of you. 🙂

While I realize this is an elimination diet, I expect I'll have to abide by it for several weeks before I add things back in. Bottom line is I don't know how I'm going to get through those several weeks without dropping weight, and at 89 pounds, I don't have much to spare!

Another issue: Most of the recipes I've seen online are WAY complex and require more energy than I've got. And AIP prepared meal services don't suit as they won't tailor to my low fat and sodium requirements.

Someone asked re: scientific basis for this diet. The jury seems to be out. One Mayo Clinic article called it a fad diet, explaining that the lectins I'm told AIP eliminates are mostly destroyed or altered in cooking. However, some people say it helps... and I could sure use some help! So I'm very willing to try. But one day on this diet left me hungry.

BTW, I have been STRICTLY gluten free for 40 years because I am a severe celiac, and I eliminated refined sugar and sugary products from my diet 30 years ago. So I've had those bases covered for a long time.

If anyone has more suggestions after reading all this detail, please suggest away. And meantime, thanks to all who shared their thoughts.

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I’m on my 5th AI disease, including primary biliary cholangitis, which attacks the bile ducts of the liver. I was specifically told not to do AIP, but to do the Mediterranean diet instead for its anti inflammatory effects (I was thinking about eliminating gluten- still not sure about that). Can you look into that instead of AIP which is so restrictive?

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@cpd54

I’m on the AIP diet. It did help with my symptoms. And I can tell when I eat something I shouldn’t, like gluten. But it is a very restrictive diet. I would suggest talking with your doctor before going on it. IMHO, vitamin supplementation is needed, especially B and Calcium.
Good luck with your health journey. It’s never easy to know what to do.

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Thank you for your reply. I will talk to my neurologist and sees what she says. She is generally on board with me trying to figure things out and since she admits I am still a question mark, even to her, and thinks I might have UCTD, I don't see why she would think it is a bad idea. I will read more of this thread as there seems to be a lot of information. Thank you!

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I am considering a trial of the Autoimmune Protocol Diet as my fatigue and brain fog are not lifting. Fortunately, my pain is much better. Because of the lack of rheumatologists in my area, my diagnosis is unclear. The posted comments are very helpful, thanks to everyone. My understanding is that this diet is a tool for discriminating which foods or food groups are triggers for autoimmune flares. An elimination diet was suggested to me by several nutritional professionals over my adulthood. I resisted the suggestions as the diet seemed extreme at the time. Gluten and most dairy are problems for me, as are alcohol, sugars, lectins, nitrates and a few other things. I have been consistently gluten free for many years, but my motivation was low to avoid all the other things continually. Now I'm more motivated! My suggestion to bayhorse is this: my nutritionists mentioned a type of elimination protocol for those who cannot, for any reason, tolerate a total classic elmination diet. It was called a "rolling" pattern. Pick one food that may cause you trouble, i.e., corn? Give it up for a couple of weeks, keep careful notes, and then re-introduce slowly over a week or two. Keep doing this with other foods that you eat regularly. Don't forget spices! Not as accurate as a major elimination, but a beginning. You may want to seek out a professional who know about this. Also, if you can't tolerate much fat, try increasing volume of food by eating more frequently. It can be very small amounts. Watch out for increased agitated movement when cutting down on foods; that will burn up calories. Our bodies produce an endogenous speed when sensing starvation. A quiet half hour sitting after eating can help. Lastly, I use Morton's Lite Salt to prevent my PVC. It helps keep my electrolytes in balance with low sodium, magnesium and potassium. Just a sprinkle on top of food seems to help. Good fortune, everyone. And again, thanks for all the helpful information.

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I’ve just noticed your weight. You didn’t mention your age but if you might be at risk for osteoporosis watch your calcium intake if you go on the AIP diet. It is so restrictive and you won’t be eating foods that supply a lot of calcium. What to eat for osteoporosis prevention is a whole other discussion….

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@margar1

I’m on my 5th AI disease, including primary biliary cholangitis, which attacks the bile ducts of the liver. I was specifically told not to do AIP, but to do the Mediterranean diet instead for its anti inflammatory effects (I was thinking about eliminating gluten- still not sure about that). Can you look into that instead of AIP which is so restrictive?

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Do you know why you were advised not to do AIP?

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@cpd54

I’ve just noticed your weight. You didn’t mention your age but if you might be at risk for osteoporosis watch your calcium intake if you go on the AIP diet. It is so restrictive and you won’t be eating foods that supply a lot of calcium. What to eat for osteoporosis prevention is a whole other discussion….

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Thank you for your concern. I have osteoporosis and am on Tymlos injections for that. Still, hard to maintain weight given dietary restrictions. Not only am I gluten free, but I have heart disease, so am off most saturated fat, and salt. And I try not to eat refined sugar.

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@bayhorse

Do you know why you were advised not to do AIP?

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They said there wasn’t enough hard research. They said the Mediterranean diet was best.

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I have been on an elimination/low fodmap/low histamine diet for 7 weeks now. I chose to combine all of these at one time so I could see how I react to individual foods as I add back 1 food at a time after my 8th week. I began to feel good after 1 month. But, I have a lot of weight to lose and have been losing. Your case is very different from mine bc of the weight. Ill be interested to hear what guidance you receive.

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In my case, with rheumatoid arthritis, the AIP has been great; in two months, symptoms decreased by 80% at least. Certainly is restrictive and may be difficult at the beginning. Also, I have lost weight, but there are allowed carbs that you can use frequently and increase servings… about calcium, you have broccoli and spinach…
In my personal opinion worth a try!
(In case you decide to try, I strongly recommend checking the original source “paleomom” website)

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Hi, everyone. I haven't done the AIP diet per se, but I'm looking into what anti-inflammatory diet has evidence for helping me with an autoimmune neurological condition -- focal chronic inflammatory demyelinating polyneuropathy (CIDP). I'm surprised at how confusing it is, and how much is based on speculation or rumor! I want to know what foods are supported by science to either eat or eliminate.

This paper from the journal Autoimmunity Reviews a few years back (https://doi.org/10.1016/j.autrev.2017.05.007) shows the very complex role of coffee/caffeine, which I'm curious about because so many people say it needs to be eliminated. The authors describe how it is associated with increased risk of rheumatoid arthritis and type I diabetes, but reduces the risk of things like ulcerative colitis and multiple sclerosis, while it has no demonstrable relationship with lupus or Crohn's disease.

And this paper from the journal Nutrients that came out about 6 months ago (https://doi.org/10.3390/nu15183910) also says coffee is associated with decreased cardiovascular disease and kidney disease, and has no demonstrable relationship with peripheral neuropathy.

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