← Return to MGUS with bone pain?
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Blood Cancers & Disorders | Last Active: Feb 10 12:28pm | Replies (36)
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in reply to @loribmt Thank you for your ongoing support. My appointment today went well, I do not have MM. However, I must tell you how the appointment started. I am sitting in the exam room, doctor walks in and says, "Hello Betty and how are you since our last visit?" I say, "I am not Betty." He says, "Why are you here?" I say, " I am here because my PCP is unable to interpret my lab results." The doctor says, "What lab results?" I say, "All of them, especially the IGG test and the light chains." He says, "You are so thin, why?" I try to explain why, that I have dilation of my bile ducts, but I have no definitive answer as to why because the hepatologist does not know why. He further says that my red blood cell count is very low, which I am well aware of. He says, "How long has your red blood cell count been low?" "For many months, I say." "You should be on iron supplements." "My PCP told me not to take iron." I am shaking my head as I type this because this is why I do not want to go to any other doctors.
In any event, the labs are all skewed because of the weight loss, and I will now begin iron supplements. He is also ordering many more labs to check to see if I have iron overload because that too showed up on a lab test, and both my father and nephew had/have this problem.
I felt like I was in the twilight zone. At least he did not ask if I was constipated, because that has been a common question every single doctor asks me when I first see them. What is that about?
I am happy he does not see any cancer. This is very good news. However, after I got home I began thinking about those IGG results and what, if any treatment is needed.
I received the results from the labs drawn today, and it appears that my LDH lab result is especially high. I understand this could be for a number of reasons, those of which I will learn more about during a phone call visit in two weeks.
I think now I just want to crawl into a cave and begin chalk drawings on the walls.
I will present the water color painting once I have completed the same. Truth be told, I am still a wreck. However, I will get through all of this one way or another, even if it means painting more signs, but I will not direct any more to my neighbor. I have a strong feeling she will move. Now I am redoing my health care advance directive for the third time in a year. Oy vey