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MGUS with bone pain?

Blood Cancers & Disorders | Last Active: Feb 10 12:28pm | Replies (36)

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@loribmt

👀 There are so many reasons to love this post. ☺️
While it’s unsettling for you, your neighbor is providing for some amusing stories. In our former neighborhood we had a very disagreeable neighbor and truth be told, I wasn’t above a little juvenile passive/aggressive behavior in a subtle attempt to get even…though it was under the guise of “I have rights too.” 🙃. Putting out little signs in a foreign language has me bowing to your prowess!

I think that $95.00 was well spent if it got you patched up and some antibiotics! If you have a suppressed immune system, those pesky germs can get out of control in short order. So thank your friend for insisting you go to the ER.

And now to this sentence you wrote that made eyes and mouth pop open! “I have been doing some amazing art to help me through this period of my life, now working on a water color of my digestive system.” Well, if that isn’t a cliff hanger! I’d love to see some of your art work and especially this visceral piece. (See what I did there? Haha) Have you been to the “Art for Healing” discussion?? https://connect.mayoclinic.org/discussion/art-for-healing/

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in reply to @loribmt Thank you for your ongoing support. My appointment today went well, I do not have MM. However, I must tell you how the appointment started. I am sitting in the exam room, doctor walks in and says, "Hello Betty and how are you since our last visit?" I say, "I am not Betty." He says, "Why are you here?" I say, " I am here because my PCP is unable to interpret my lab results." The doctor says, "What lab results?" I say, "All of them, especially the IGG test and the light chains." He says, "You are so thin, why?" I try to explain why, that I have dilation of my bile ducts, but I have no definitive answer as to why because the hepatologist does not know why. He further says that my red blood cell count is very low, which I am well aware of. He says, "How long has your red blood cell count been low?" "For many months, I say." "You should be on iron supplements." "My PCP told me not to take iron." I am shaking my head as I type this because this is why I do not want to go to any other doctors.
In any event, the labs are all skewed because of the weight loss, and I will now begin iron supplements. He is also ordering many more labs to check to see if I have iron overload because that too showed up on a lab test, and both my father and nephew had/have this problem.
I felt like I was in the twilight zone. At least he did not ask if I was constipated, because that has been a common question every single doctor asks me when I first see them. What is that about?
I am happy he does not see any cancer. This is very good news. However, after I got home I began thinking about those IGG results and what, if any treatment is needed.
I received the results from the labs drawn today, and it appears that my LDH lab result is especially high. I understand this could be for a number of reasons, those of which I will learn more about during a phone call visit in two weeks.
I think now I just want to crawl into a cave and begin chalk drawings on the walls.
I will present the water color painting once I have completed the same. Truth be told, I am still a wreck. However, I will get through all of this one way or another, even if it means painting more signs, but I will not direct any more to my neighbor. I have a strong feeling she will move. Now I am redoing my health care advance directive for the third time in a year. Oy vey