My doctors know nothing

@tomrennie

Your words have expressed an attitude that is positive and worthy of repeating, Tom. As we can never be happy with the idea of having cancer, we do need to appreciate the work that the medical profession has done and the care that they are able to provide.

As we allow ourselves to be proactive in our own care, i.e., learning as much as we can about this rather onery disease, finding the best specialists to treat us, we do need to relax and accept the help we are being given and be appreciative.

I've gotten into a habit, which I'm sure is not an original thought, but when my hospital system sends out requests for donations, I will often send a small donation. I will ask that it be to "honor" one of my doctors. In that way, I feel I have expressed my appreciation in a way that will help with research and care for others.

Once again, thanks for this great reminder to appreciate the medical care that we receive. Gratefulness always helps, in whatever way we express it.

You are welcome Teresa. I remember when I first got diagnosed 8/22/2022. Thee lead Doctor came in. He was wearing a huge smile. I thought that he was about to give me good news. He told me that I had stage 4 pancreatic cancer and that it spread to my liver. I told him that I didn't think his news was good news. He said that was the best news he gets to give all day. I told him I couldn't do his job. I would cry all day. He said that can happen. He is human after all.

@tomrennie
That is so great Captem worked for you. Do you mind sharing what stage pnets? Stage 1, 2, or 3? Thank you

I have been stage 4 since the beginning primarily to the liver. It likes to play hide and seek with my bones, but they mostly go away. I got all new tests/scans last week. The results are stable with a slight decrease in liver metastasis. Let me know, if you have any other questions.

That is fantastic! I meant to ask the Grade? I sure hope my husband gets similar results. Thank you so much for getting back.

Also if they are functional or non functional?

Grade 2 with a ki-67 of 8. They are functional. Keep me posted. Every one reacts differently. When did your husband start? If I can shorten his growing pains from my experience, I will be glad to share. Ok?

Thank you! His is nonfunctional KI67 25%. It was found my accident. So quite shocking. He just finished 1st cycle of Captem. On a break right now. Adding the Tem days he became quite anxious. Overall he tolersted the cycle pretty well. I have heard sometimes people get more side effects on the second cycle. I have to say it is diffcult navigating all tbis because he has a physical job. Not at a desk and not always alone. A month or so prior he has been making protein veggie smoothie shakes every am and he says he overall feels better. Should of added veggies years ago. He is eating smaller meals. He hasn't had to use nausea medicine yet. But he is dealing with anxiety. Thank you for listening.

Excuse the typos sometimes it is hard check before I send....