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Intracranial dural arteriovenous fistula and loud pulsating sound

Stroke & Cerebrovascular Diseases | Last Active: Oct 13, 2020 | Replies (10)
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@lizm2

Hello @ganana , I also have a DAVF and SRS has been recommended. I have been searching for discussions about SRS and how effective it is long term. It is radiation, so I am trying to make the best decision possible. Did the SRS not get rid of fistula? Also, I too have the same pain and tenderness you describe behind the ear at base of skull. I always mention it, but no doc thus far was concerned. Any luck with this? I know this is an older thread...

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Replies to "Hello @ganana , I also have a DAVF and SRS has been recommended. I have been..."
Colleen Young, Connect Director | @colleenyoung | Oct 7, 2020

Hi @lizm2, I'm not sure if @ganana is still following this forum. I hope they will see your message as you ask great questions and want to get first hand experiences.

Several members have shared about their experiences with stereotactic radiosurgery (SRS) for brain tumors in this discussion:
- Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma https://connect.mayoclinic.org/discussion/gamma-knife-radio-surgery-for-meningioma/

I realize that that you are looking for experiences with SRS for dural arteriovenous fistulas (dAVFs). Perhaps @avmcbellar might have some experience to share.

Liz, do you plan to go ahead with SRS?

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