Total Knee Repair Revision: A Success Story

Posted by ezas123 @ezas123, Aug 4, 2022

Hi all I I am 1 week out of revision today . I must say this recovery has been so different from my first. I have so much more movement in my knee …. My leg goes straight….. my flexion work in progress but I was at .70 right out of surgery ….. I was there a year after tkr…..struggling of course with inflammation which I expected….I am icing and going to my therapist to help with edema…. I started pt this week also so you know how it goes take to where you can than push little more…..the pain really sucks going through this all over again I have not forgot the pain from last time … but the difference is I know I am seeing results already….even with the pain for right now I am so glad I did revision….. good luck to others going through and might be going through this .

Interested in more discussions like this? Go to the Joint Replacements Support Group.

@msmom

What is mfr?

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Myofascial release therapy … you will see all over the boards here…. I found helpful at beginning of tkr for swelling than later for pain and now scar tissue

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@carolove

Sue, thank you so much for being a Volunteer Mentor!!!
In my case I just feel a dull stabbing pain in my knee and hip area when walking. It feels as if the implant is too long and it puts pressure in my knee and hip when walking. What search terms can I use on this site to find others experiences with this situation?

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You might be a candidate for a poly swap that is smaller and fits your leg better. I just had one to make my leg longer to match other leg.

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@ezas123

Hi all three weeks out and feeling amazing…. My gait is almost normal now although I am still using cane outside of my home I still having some weakness in my quads, and I experience sharp pain with change of direction but that is to be expected….. I talked to pt increased a few exercises to help strengthen area …. Started massage on scar yesterday must say that was painful …..but I can handle anything lol because I wake up the next day and I see progress …. My knee bending a little further without as much pain and my knee looking normal again ….. before this surgery after my first tkr it always looked to big and I had lump on right side dr could not explain ……
My mfr therapist is going away for 3 weeks must say I am little anxious I have been seeing her 3 times a week for edema…. She is giving me a number of someone she trust that can help but they don’t do mfr she is only one where I live that does mfr work …..so crossing my fingers ….keep you posted

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I have a lump on the side of my knee as well. It’s very numb and never goes away. I don’t sleep very well because it’s painful. Doctor can’t explain it either. Did you ever get an answer?

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@teak

I have a lump on the side of my knee as well. It’s very numb and never goes away. I don’t sleep very well because it’s painful. Doctor can’t explain it either. Did you ever get an answer?

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No my lump still there but does nut hurt what so ever ….when I had my revision done I asked if he could remove he said no , he would not be working on that side of knee and did not want to create another possible issue… which I totally understand for something that was not bothering me….

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@ezas123

Sorry I did not see this …. I got my knee replacement one year ago was never able to gain flexion …. Always had residual pain ….. my original Dr would not do anything I sought a second opinion …. Which first appointment Dr told from original Dr X-rays that the replacement was slightly to big and may be causing my problems…. Within a month I was in got the knee replacement ……my new knee is two sizes smaller and recovery has been amazing…. I hope this helps you

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I have suffered for four years with a right knee replacement, I am so nervous to go in and have it redone. Just this past week I have decided that the pain couldn’t be any worse than what it is now, am I wrong?

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@ezas123

Hi Lori I replied to you I don’t know what happened to the text so I will try again …. So sorry to hear what you are going through…..I know it is tough to decide to go through that pain all over again it was difficult for me also until I found out my knee was too big …than I just had to mentally prepare myself I knew I was going to do the revision after I met with new surgeon…,he explained what was wrong with my knee and how and with what he would fix it he explained he used mako robotics that it is more accurate system ….. he was confident he could help me …. Fortunately I knew how to prepare for knee replacement I had my surgery on Thursday I was at pt on the following Tuesday than the following Thursday I was at myofascial release for edema I went three times a week for edema was just half hour session I had no swelling after this surgery even doing pt…. I did that the first month than dropped to twice a week for edema …. You know what relief you can get with a good knee replacement…..for me best thing I could have done last year flexion at 65 before revision surgery now I am over 100 …. The moment I woke up from surgery I knew it was going to be different I did not have pain ….. so all I can say Lori for me I found good revision surgeon , put everything in place pt, mfr therapist….. prayed a lot …. I did not want to go on the way I was ….. so Lori good luck to you whatever you choose to do…if you need to chat or have any other questions don’t hesitate to ask ….for me revision was life changing in the best way

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Which doctor did you use for revision?

Thank you.

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I am from northeast pa my dr was dr Kolesar …. His whole team is amazing …. He told me from my first visit I might always have some stuffiness but he would definitely get me more flexion … he was totally correct I went from 70 to 105 and I am still stiff but not stop me from doing anything stiff …I am always work in progress … good luck I know tuff make that decision to do again but get all your information…. Only you know what’s best for you at the end of the day ….

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@contentandwell

@ezas123 I knew a woman who also had problems after a knee replacement. She went to numerous doctors before one diagnosed the problem, the size of the replacement was too large! A revision was done and she was much better after that.

I think the most important thing when having a knee replacement is getting the absolute best doctor that you can find. There are many orthopedic surgeons who do knee replacements but you want one who really looks at the individual, not a "cookie cutter" type of surgeon. My second knee replacement was a custom-made knee so thankfully there was no chance of that being a problem, and the doctor was amazing.
JK

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I researched and went to a big city center for excellence as well.

During 6 week post op was told the femural component was a half size debate in the surgery room. I was told he’d go down a size for my second one. He didn’t like my extension at the time.
Almost 9 weeks out and I can get good ROM #s if 2 PT s crank me. Is this normal? 123*, 0*. But I revert when I go home or on Mondays ( going 3x a week, daily multiple exercises, bike at home).

Main problem is walking. Pain sets in middle front of knee about a half block in. I just can’t walk far at all. Used to 10,000 steps plus a day. I feel like my life is over. So frustrating.

Is this too early in the game? Never thought I’d still be taking ibuprofen and Tylenol just to get through my day at this point. So stiff. Knee is so tight. So hard to bend. Doesn’t feel like enough skin elasticity around it. Is there tissue expanders that work for this area? Something hits in the middle of my knee when I flex.
Not much research to find on oversized issues, or Drs owning this. I do see that MUA does not work for larger components.

Any ideas? Too early for 2nd opinion?

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@cathymw

I researched and went to a big city center for excellence as well.

During 6 week post op was told the femural component was a half size debate in the surgery room. I was told he’d go down a size for my second one. He didn’t like my extension at the time.
Almost 9 weeks out and I can get good ROM #s if 2 PT s crank me. Is this normal? 123*, 0*. But I revert when I go home or on Mondays ( going 3x a week, daily multiple exercises, bike at home).

Main problem is walking. Pain sets in middle front of knee about a half block in. I just can’t walk far at all. Used to 10,000 steps plus a day. I feel like my life is over. So frustrating.

Is this too early in the game? Never thought I’d still be taking ibuprofen and Tylenol just to get through my day at this point. So stiff. Knee is so tight. So hard to bend. Doesn’t feel like enough skin elasticity around it. Is there tissue expanders that work for this area? Something hits in the middle of my knee when I flex.
Not much research to find on oversized issues, or Drs owning this. I do see that MUA does not work for larger components.

Any ideas? Too early for 2nd opinion?

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I got second opinion I think it was 5-6 months out …. My original dr was giving up just saying wait a year go in and clean up scar tissue …. For me that did not sound right . I explained to him felt like there was to much in there that is why could not bend he would not listen ….. I found my own water therapy had his office write script for I tried everything myofascial release …during water therapy pt suggested second opinion. Best thing did for myself … my first appointment with original after surgery x-ray one look he knew was to big was not going to get any more flexion …. Set up revision date for one year because you have to wait one year …. Like I said still stiff and sore but flexion so much better… recovery this time was so much easier because my body was not fighting against it … I know exactly how you feel so frustrating some dr don’t listen … but some do so don’t give up it does get better ….good luck

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@ezas123

I got second opinion I think it was 5-6 months out …. My original dr was giving up just saying wait a year go in and clean up scar tissue …. For me that did not sound right . I explained to him felt like there was to much in there that is why could not bend he would not listen ….. I found my own water therapy had his office write script for I tried everything myofascial release …during water therapy pt suggested second opinion. Best thing did for myself … my first appointment with original after surgery x-ray one look he knew was to big was not going to get any more flexion …. Set up revision date for one year because you have to wait one year …. Like I said still stiff and sore but flexion so much better… recovery this time was so much easier because my body was not fighting against it … I know exactly how you feel so frustrating some dr don’t listen … but some do so don’t give up it does get better ….good luck

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There is not enough information to research this issue. My PT team hint that this is my issue. Did you get good numbers, but couldn't keep them? I have also been massaging my scar area, as to alleviate any potential ongoing scar issues (don't know if this really helps). I have been moving, icing, exercising ... right from the start- just super hard. I sometimes wonder if too much cranking and exercise is potentiating the issue.
I have a 2nd opinion virtually from a credentialed orthopedic surgeon per my insurance soon. I need to explore all options for sure. My original surgeon casually remarked at the 6 week that he could do a MUA when I was to have my second knee done- I didn't understand the ramifications of this at the time. I have since learned how grueling this is, and would render 2 knees down and starting over all over again, and that it doesn't work for too-large components. He didn't even look at the PT report.
So, you worked on your knee for a year before the revision? So much pain and agony and effort. Wow. Revision surgery sounds scary as well. How did you seek someone who would/could do this? Does first surgeon hold any responsibility for the $$$, time and pain involved? Do you take it up with insurance? I've always have been healthy and have stayed away from all of this...
Thank you for your comments- they were very helpful.

This says it all "recovery this time was so much easier because my body was not fighting against it ". My goal was to do one, then the other right away, so I could get on with my life. Man! What a major fubar set-back.

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