How many people do you know that have Long Covid?

Posted by kdgnteacher @kdgnteacher, Jun 5, 2023

How many people do you know that have Long Covid?

The latest statistic that I read was that there are approximately 65,000,000 worldwide that have Long Covid - HOLY GAUCAMOLE!!! I only know 3 people that have it and I really don't know them that well. I have only talked to one of those three people. Because of this I feel so extremely isolated. I wish I had more people to share my symptoms, concerns and anxiety with. Do you feel the same way?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

@car0

I am not shilling for Mt Sinai, but thinking about Kndr’s isolation…, thot this might help
Post-Acute COVID-19 Syndrome is New—But It’s Real

“Because post-COVID symptoms are such a new phenomenon, many patients find that friends, family, and even some physicians dismiss what they are experiencing. This can cause anxiety and depression on top of the physical burden. We know, however, that there are enormous numbers of patients who are presenting with these symptoms.

Many of our patients at the Center for Post-COVID Care are in their 20s to 40s, were relatively healthy, and had mild cases of COVID-19. Most were never hospitalized. Some patients come to the center with diagnosable damage from COVID-19, especially in the lungs. However, many have no clear cause for their symptoms—except that they had COVID-19. One theory is that the immune system is still in overdrive from fighting the virus during the infection. We are studying commonalities among patients, using data we have compiled on lungs, hearts, and brains from high resolution imaging. This will help us determine the effects of COVID-19. In many patients, we are also finding microscopic blood clots in the lungs, heart, liver, and the brain.

“The virus has many different effects on the body. Because the virus goes everywhere after it goes to the lungs, the immune response goes everywhere as well. So part of the damage is from the virus itself, but the immune system is also doing damage to your organs. Your immune system starts by activating cells that kill the virus. But sometimes these cells damage the organ the virus is next to, so it’s almost like collateral damage,” says Zijian Chen, MD, medical director of the Center for Post-COVID Care.

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Very informative and helpful. Thank you!

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@kitty2

I got Covid 12/19/21..the day my world forever changed. I was unable to work for several months. I went back to work and then out again for another month. The fatigue was unreal. A lot of nerve pain, my right arm was unreal. It felt like I was getting zapped by an electric fence 24/7. My toes are still numb , reddened and sore from my covid toes. For the last year 1/2 it hurt to walk and put shoes on, I just went to a foot doctor the other day, he took xrays and told me to get some blue accommodator orthotics. I wore them yesterday , and for the first time, I could walk without the nerve pain. How wonderful is that. The worst part of this is the way covid attacked my immune system and left me with a severe case of ulcerative Colitis. Medications do not work. My hair falls out daily. So many side effects from the medications, it was worse than the disease itself. Hospitalized twice, unable to eat normally. I have a physical job and I have told that the physical activity and lifting revs up my gut. This is the worse part for me as I have been very isolated as people do not get this long covid syndrome, so I have preferred to be myself. It just makes it easier. I hope you find some help . It takes a long time , patience and prayers. There is no cure for this syndrome as they do not know what to do with all of us. We a mystery to the medical profession. I hope some day they can help us. Hang in there. You can write me anytime. I love this connect at least we are not alone. Sincerely, Kitty2

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Bless you! I get it, but, my symptoms are not as severe as yours. You are correct.....we are a mystery to the medical profession. I don't share my long Covid ailments with many, because it's hard for folks to understand. My faith in the Lord sustains me in this. I pray this nasty virus will be gone soon. Prayers & Hugs....

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@covidstinks2023

Bless you! I get it, but, my symptoms are not as severe as yours. You are correct.....we are a mystery to the medical profession. I don't share my long Covid ailments with many, because it's hard for folks to understand. My faith in the Lord sustains me in this. I pray this nasty virus will be gone soon. Prayers & Hugs....

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Hi..thanks for your reply..prayers and hugs to you also..I refer to this as A.C. and B.C....bc is before covid and A.C. is after Covid. Have a nice evening..Kitty2

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Yes, I got Covid on Easter 2022. 5 other people got Covid. I was the only one who has long Covid. Most people I talk to never heard of it including Health Care workers..know of 2 people. I feel very unlucky especially since I thought I did everything right. Stayed in shape, was very active and 2 shots and 2 boosters. I get alittle upset when I read “the best way to avoid Covid is to get fully vaccinated.” Has become very old and frustrating….

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