← Return to MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

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@leslie2121

I’m so sorry- you don’t need this additional frustration!
Hematology is very detailed & nuanced it seems- every time I go over my lab results I take away something new I hadn’t noticed.
I was diagnosed with MGUS in 2021 during a routine physical. I get lab work yearly now.
I think there’s a balance between giving us so much information we overwhelmed & anxious or just answer specific questions we ask and reassure us.
But things can be missed- no one cares as much as we do about our own health.
We do have to be our own advocates!

My initial BMB report was wrong- I was given a grim prognosis- I immediately got an appointment with UT Southwestern (Dallas) with a myeloma specialist- they looked at my slides and said the plasma level was 1-2% ( not 10%). I also had the slides sent to MD Anderson, and Honor Health in AZ to a specialist there. They all agreed MGUS.
So I had to search out online and work aggressively to get to the right people.
I wish you the best as you get clarity, and for peace & good health.

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Replies to "I’m so sorry- you don’t need this additional frustration! Hematology is very detailed & nuanced it..."

I have tried to make my voice heard but to no avail I’m cut off mid sentence and he’s out the door. This next appointment is going to be different I am going be heard and if not I will ask to be referred to another specialist or I’ll reach out to my primary for a referral. Everyone’s encouragement has been amazing and very appreciated. It is helping me to find my voice and making me realize I count too! My appointment is tomorrow I will updated asap. Thank you so much.