← Return to Polycythemia Vera: Just been diagnosed

Discussion

Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: 8 hours ago | Replies (400)
Comment receiving replies
@colleenyoung

Hi @margrethe, I can imagine with such a new diagnosis, yet to be confirmed you have many questions. I moved your post to this existing discussion

- Polycythemia Vera: Just been diagnosed https://connect.mayoclinic.org/discussion/polycythemia-vera-1/

I did this so you can browse the previous posts and connect easily with other PV members like @robinll @nypara66 @learnandlive @itsmepeggysue @new2this @seamus1010 @csgreetings and many more.

I understand your wish to improve your symptoms of shortness of breath and fatigue while you wait for your appointment with the hematologist.

You might find that these breathing exercises help both with shortness of breath and the anxiety you're experiencing:
- Looking for breathing and lung strengthening exercise videos https://connect.mayoclinic.org/discussion/looking-for-exercise-videos/

Good for you for exercising. Have you found a good way to find the right amount for you and to pace yourself?

Jump to this post

Replies to "Hi @margrethe, I can imagine with such a new diagnosis, yet to be confirmed you have..."
margrethe | @margrethe | Jun 5, 2023

Thank you for moving the post! And yes, I try to over do it a lot of times and I can’t keep up with my fiancé or friends when we are active. I have found that walking works for me. I will use my inhaler and wait it out if I can’t catch my breath, but a brisk walk has helped a lot.

VIEW AND REPLY