Living with Neuropathy - Welcome to the group

Hello. I just joined here and am just learning how to navigate the site.
I have peripheral neuropathy with no diagnosis as to the reason for it. So I am looking for pain relief or a possible cure. I am on 1200 gr a day of Gabapenten, but it is not doing a lot for the pain, especially by the end of the day. Any suggestions?

Welcome @jeanm1, Sorry to hear the gabapentin isn't controlling the neuropathy pain. I also have idiopathic small fiber PN but only have the numbness and no pain so medication is off the list of anything that helps for me. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. It's good to learn as much as you can about your condition and what treatment options are available that might provide relief. Here are my two favorite reference sites for learning:

--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
--- Neuropathy Commons: https://neuropathycommons.org/

The Foundation for Peripheral Neuropathy has a pretty comprehensive list of complementary and alternative treatments here - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf.

Have you looked into any alternative treatments?

Welcome @jeanm1, Sorry to hear the gabapentin isn't controlling the neuropathy pain. I also have idiopathic small fiber PN but only have the numbness and no pain so medication is off the list of anything that helps for me. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. It's good to learn as much as you can about your condition and what treatment options are available that might provide relief. Here are my two favorite reference sites for learning:

--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
--- Neuropathy Commons: https://neuropathycommons.org/

The Foundation for Peripheral Neuropathy has a pretty comprehensive list of complementary and alternative treatments here - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf.

Have you looked into any alternative treatments?

My neurologist has suggested I can try a different medication if I want to, but warning that every medication has it's side effects. Since I have not had any side effects from the Gabapentin, I have decided to stay on it for now. Some days are better than others, but some days leave me wondering if I should be switching to something else. I don't like taking any more medication than necessary. I do wonder if more exercise like walking, would help or aggravate
the condition?

My neurologist has suggested I can try a different medication if I want to, but warning that every medication has it's side effects. Since I have not had any side effects from the Gabapentin, I have decided to stay on it for now. Some days are better than others, but some days leave me wondering if I should be switching to something else. I don't like taking any more medication than necessary. I do wonder if more exercise like walking, would help or aggravate
the condition?

I'm no expert but I think it helps some but may depend on how strenuous or how long. I try to exercise at least 30 to 45 minutes daily although I sometimes miss a day or two. Here's some references on the topic.

--- Benefits of exercise intervention in reducing neuropathic pain: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3983517/
--- How to Exercise Safely With Neuropathy: https://www.everydayhealth.com/neuropathy/how-exercise-safely-with-neuropathy/

Hello,
I believe exercise can/does help.
Was diagnosed with PN on April 7th, 2023.
I do water walking, water aerobics, biking, walking, and weight training.
I have found I have better circulation in my limbs!
I have recently noticed numbness in my left, upper back.
I think, if we keep moving, we can slow down the process concerning PN.
Just M.H.O. I am not a Dr. or N.P.
Hope this helps! Pat
Pat

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Hi @jeanm1, When you reply to an email notification like you would a normal email, your post will have all this extra coding in it from your mail program. It's best to click the VIEW & REPLY button at the bottom of the email notification and then you can type in the reply box below the post.

Hope this helps!
John