Autoimmune Diseases are relentless

Can you drink some water or other liquid to address dehydration?

Have you had any blood tests for autoimmune problems? Or a Lyme test?

For food sensitivities you could see a dietician to try an elimination diet. Or start with dairy as well as gluten. You don't have to have celiac to be sensitive to gluten. I now avoid dairy, gluten, nuts, salmon, avocado and chocolate. Some are true allergies and some are sensitivities.

Ringing in the ears is tough but the brain gets used to it. I have that also.

Finally maybe find a PT who does massage and/or a non-surgeon orthopedic doc who can do lidocaine injections.

Hope you can find a way to feel better!

I'm wondering if this could be neurological puffy face at times upon waking up and I'm dehydrated too tremor's upon waking up at times where my head shakes with slurred speech at times inflammation throughout body food is killing me I was tested for gluten sensitivity it came back okay ringing in my ears and it can get worse after eating chronic pain is always there it never leaves me ALONE bones hurt especially spine joints are deteriorating intestines a mess my are hips bone on bone there's gallbladder issues and bladder as well with environmental triggers and mentally I'm a mess now with an OCD in my life which is absolutely horrible so much is connected I wish it would just go away 😥

I'm wondering if it's neurological I get a puffy face at times upon waking up I'm dehydrated tremor's upon waking up at times where my head shakes with slurred speech at times inflammation throughout body food not good on my body I was tested for gluten sensitivity it came back okay ringing in my ears and it gets worse after eating chronic pain is always there it never leaves me bones hurt especially hips and spine the joints are deteriorating intestines a mess and my hips are bone on bone there's gallbladder issues and bladder as well with environmental triggers and mentally I'm a mess now with an OCD in my life which is absolutely horrible so much is connected I wish it would just go away 😥

Welcome, @lovelyday. I noticed that you wished your question to appear in mutiple related groups. I merged your posts into one discussion that is visible in all 4 support groups so that you only have one place to track the conversation. 🙂

In addition to the helpful reply from @windyshores, I'm also tagging @astaingegerdm @becsbuddy @longislandswag23 @grammy82 @griller to name a few who understand the relentlessness of autoimmune conditions.

You're so right that the body systems are interconnected. How long have you been dealing with the puffy face issue and tremors? Have you talked about seeing a neurologist with your doctor to investigate further?

@lovelyday first off breathe hyperventilating over it won't make it better..what does gp say..u have to start the process in steps.. if u saw gp he will prob send u to a neurologist make a list of your symptoms and start from there..🙏 best of luck

Neurologist and maybe rheumatologist.

@lovelyday
It sounds like you are truly having a difficult and painful time. It is very important that you see a physician that can diagnose what the causes are. I can’t emphasize enough that this support group is wonderful however we should not be diagnosing or suggesting
what treatments you should receive. Your physician sees you in person and can assess you, do the appropriate treatments and if needed refer you to a specialist! Also if you are not satisfied then you need to find a physician that you are satisfied with and that you trust! I hope you find the appropriate treatment and feel better soon. As for the individuals that are making suggestions for as to any diagnosis or treatment I do believe this support group should be used to explain to others what has worked for you with a specific diagnosis only. I know we all have our hearts in the right place but suggesting treatments can be dangerous.

@kimegraves thanks for the reminder on guidelines. I cannot edit my post but want to say that every question I had above came from my own experience.

My kidney values are worse with my frequent dehydration.

I have had chronic Lyme and also a lupus diagnosis and recent positive antibodies for scleroderma.

I have done a food elimination diet that resulted in a very limited diet that nevertheless lessened inflammation.

I have tinnitus- ringing in the ears- and have had medical appointments for it that tell me my brain will adjust.

I am seeing a PT for massage because PT exercises increase inflammation, and have been seeing a non-surgeon ortho for lidocaine injections.

Sometimes I slip up and think it is assumed I am writing from experience. What I just wrote here exactly matches my response 🙂 This is a good reminder @kimegraves to monitor ourselves when we respond quickly from experience and don't make it clear that it is from our own lives.

@lovelylady My heart goes out to you. Is it possible for you to go to the Mayo Clinic itself or at least to a large medical facility for a comprehensive evaluation? It just sounds like a fresh look and someplace that will run tests and work with a team of specialists to put the pieces together for you.

I hope you can find a new beginning.💞

@lovelyday. I’m so sorry to her about your problems, especially when they are so random and frequent. When my journey with autoimmune disease started, I cried all the time because i felt so bad, but it seemed that no one was listening. And when I was finally diagnosed, I couldn’t believe that autoimmune diseases aren’t curable, only manageable with almost constant attention. But now, after 6 years, it has become part of me. I have more good days than bad days, so life’s going good (except now I have covid!)
Do you have a good doctor who is working with you? That’s the key! A doctor who you like and trust and who listens to you.
Will you ask your doctor for a referral to neurologist or rheumatologist? That’s the type of disease specialist you want to see. Please post again so I’ll know how you’re doing