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Neuropathy symptoms are worse when I sit or lay down: Anyone else?

Posted by pitepalten @pitepalten, Nov 26, 2021

My problems are worse when I sit or lay down. I now work standing and limit sitting or laying watching tv. When I wake up my arms have fallen asleep. This started 3 months ago and the discomfort is all over but worse in my arms, legs and back. I have had all the tests but no one can find anything. I also have a rash on my neck. It has been there for a week. Doesn’t itch. My dr prescribed 30mg Zymbalta. I take it prior to going to bed. Anyone have similar symptoms?

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pfbacon | @pfbacon | Feb 4, 2023

Me too. Pain is the worst in the morning. Once I force myself to "push through the pain" and get moving, I can usually ignore it. I also walk on the beach a couple of hours a day and I usually start to feel better (sometimes it's just miserable all day).
I have axonal sensory neuropathy, take gabapentin, horizant, some tylenol when needed but anti-inflammatories like aspirin exacerbated my asthma to a dangerous degree and prescription anti-inflammatories did as well.

Peggy

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hughpuppies | @hughpuppies | Apr 30, 2023
In reply to @rickhood "My symptoms (numbness in my feet) are worse after sitting and when I first get out..." + (show)
@rickhood

My symptoms (numbness in my feet) are worse after sitting and when I first get out of bed in the morning. I do not feel the numbness as much when sitting or lying as I do when standing up after sitting or lying. Mine started all of a sudden 2.5 years ago, and no "smoking gun" cause found yet. Fasting glucose a bit high (104) but A1C is OK. I have low B12 but I take shots, and B12 fine with those. I have a bit of a lower spine problem, but experts looking at MRI do not see that as a cause. I am overweight with BMI at 29 so I need to work on that -- have actually gained wight recently and feet feel worse so that is an indication. Also looking into is possible sleep apnea. I have been taking B vitamins for a long time. Just started Alpha Lipoic 2 weeks ago, will see if that does anything. I take 2 one hour walks each day, which I love and actually makes my feet feel a bit better. I wonder why the walk makes feet feel better. I know it lowers blood sugar (I have measured before and after and it drops by around 20). I also know it increases circulation, but doctor says my circulation is fine. "When I wake up my arms have fallen asleep." << I also get that sometimes.

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Mine is worse then walking or moving around. My left leg is worse than my right. My left foot seems to hurt a lot more than my left foot. I think the reason my left foot is worse than my right is because I have 100% blood flow in my right and only 75% in my left leg. I take .75 of Amitriptyline, 600 mg of Gabapentin, 60 mg of cymbalta, 10 mg of prednisone, 0.5 of ropinirole, 400 mg of ibuprofen. Most of the time it does not work when I use it at bedtime, Sometimes when I walk around I get pain in my hips and thighs and my feet go numb sometimes.

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1 reply
hello2 | @hello2 | Jun 1, 2023
In reply to @hughpuppies "Mine is worse then walking or moving around. My left leg is worse than my right...." + (show)
@hughpuppies

Mine is worse then walking or moving around. My left leg is worse than my right. My left foot seems to hurt a lot more than my left foot. I think the reason my left foot is worse than my right is because I have 100% blood flow in my right and only 75% in my left leg. I take .75 of Amitriptyline, 600 mg of Gabapentin, 60 mg of cymbalta, 10 mg of prednisone, 0.5 of ropinirole, 400 mg of ibuprofen. Most of the time it does not work when I use it at bedtime, Sometimes when I walk around I get pain in my hips and thighs and my feet go numb sometimes.

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Have you had an MRI done? I have degenerative discs in my lower lumbar spine. I think this is playing a big part on my nervous system. I had to shots in my back & P/T. The more I move the more pain I have. I can't even wiggle my toes without it starting up all the nerves in my body! I do exercise every other day. It does seem to help.

I know it's tough living like this, but what choice do we have?????

Best of luck to you.

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lewin | @lewin | Jun 2, 2023

Yes, I have felt this way for some time. Worse when lying down. Do you have arthritis that is affecting your spine. I have stenosis of neck and back.

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1 reply
hello2 | @hello2 | Jun 2, 2023
In reply to @lewin "Yes, I have felt this way for some time. Worse when lying down. Do you have..." + (show)
@lewin

Yes, I have felt this way for some time. Worse when lying down. Do you have arthritis that is affecting your spine. I have stenosis of neck and back.

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Yes I do have some arthritis. So I guess between the two that is why I'm in so much pain.

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alhorney | @alhorney | Jun 3, 2023

yes. I can't sleep while standing or sitting so I end up sometimes 3 days in a row without sleeping. Recently they found more fractures in both feet.

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rmshackelton | @rmshackelton | Jun 3, 2023

Sounds like a pinched nerve. I had that and did 4 months of PT and as long as I do my exercises it stays away. The more I am not active the worse it gets.

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davelobb12 | @davelobb12 | Jun 3, 2023

If your state has Medical Cannabis use it right before bed. Vape or edibles. It works!

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susangourdlady | @susangourdlady | Jun 5, 2023

Have you looked into peripheral polyneuropathy caused by vasculitis?

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