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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
So glad to hear you're safe and back home. Even with all your great care, there's no place like "home". You are so correct about the unsung heroes of the medical profession. Those nurses can make an unpleasant time so much better. They can't make the pillows softer or the beds more comfy, but they get you a green popsicle or ice cream cup to make you feel better. They can bring you a warm blanket if you're cold. It's the thousand little things they do that combined with the big things make us better. Welcome back! You have plans for something fun after you're all better?
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I don’t have much planned for the weekend. I will probably use the extra days to re-acclimate back to the daily grind so I’m not grabbing tail when the time comes. Slowly, of course.
One thing I forgot to throw out there as far as specifics, is that the hereditary gene in question is the LMNA gene. After extensive testing by a reputable genetic testing specialist, it was narrowed down to that. I won’t go into details about it for fear of mistranslating their info, but that’s the conclusion that was drawn.
Might make for some interesting research for someone who is curious.
I hope everyone reading this has a happy and healthy weekend…keep fighting the good fight!