Intense nerve pain months after chemo

Posted by lilliejane2 @lilliejane2, May 15, 2023

I had whipple for pancreatic cancer 17 months ago, followed by 6 months of gemcitabine and abraxane chemo. Last chemo was 9 months ago. Cancer marker rising now, but no cancer found on PET scan.
I just started having intense nerve pain everywhere.
Has anyone experienced this?

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Colleen Young, Connect Director | @colleenyoung | May 27, 2023

@lilliejane2, I'm tagging fellow members like @lfitz @helenar @lvtexas @luciad @davidtd @slosammie @markymarkfl who have experience with gemcitabine and abraxane. You might also be interested in this related discussion:

- Anyone on Gemcitabine with Abraxane? How long? Effective? https://connect.mayoclinic.org/discussion/gemcitabine-and-abraxane/

Lillijane, is the nerve pain focused on your hands and feet, as in peripheral neuropathy? Or is it different? How are you doing now?

lilliejane2 | @lilliejane2 | Jun 2, 2023

In reply to @colleenyoung "@lilliejane2, I'm tagging fellow members like @lfitz @helenar @lvtexas @luciad @davidtd @slosammie @markymarkfl who have experience..." + (show)

Hello. Thank you for your support. The nerve pain has gotten better. When it comes it is everywhere, burning from the inside. I was taking gabapentin, which helped alot, as well as herbs that have helped me with lyme related issues in the past. Recently have been taking Holy Basil extract, which I have read has wonderful immune boosting powers. I feel like it has definitely improved my situation. I'm not sure, but I think the burning pain is because of a lyme confection called Bartonella, which I have had in the past, and has resurfaced.
Thank you so much for responding to my
question. I am grateful for help, and grateful to be able to help when I can.

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