Autoimmune symptoms continuing for 12 months post Covid - no answers

@becsbuddy - I think “organizer” would be a pretty good general description of the majority of my professional career! I am a nurse practitioner by training, a computer and data nerd by inclination, and a bossy boots by many many generations of family! Most of my career was a blend of direct patient care and informatics (how can we use the computers to best advantage, how can our processes best meet patient and provider needs), so I do love to break down a process!

I am 25 and have almost the same thing happen for 2 years now. But I only tested negative for covid. Instead my doctor diagnosed me with chronic fatigue syndrome. And left me with that. No effort for treatment or answers. Its the worst feeling stuck.

I do not have fevers, but recurrent fevers are a common symptom of autoimmune disorders.

@marymaryoregon. I should have guessed! I was an oncology nurse, then I went into administration. Not that I wanted to, but I decided that someone familiar with the oncology unit should be the director, not someone who didn’t know “us.” I did well for 6 yrs but then my son’s being in Iraq just got to me. Then I got sick with this autoimmune disease and became involved with Mayo Clinic Connect.
Please stay involved with CCC! You advice is so helpful! Becky

I would look for a new doctor. Do the research. Find the best rheumatologist or rheumatological clinic in your area. If necessary, go to a top clinic in your region of the country. A two hour trip might make a big difference in your life. Good luck.

@josiahbb1713 was it your GP who diagnosed Chronic Fatigue and didn’t suggest treatment? So, how are you feeling now? And you’re not on treatment? If you’re still feeling poorly, I would suggest the you find a good rheumatologist in your area. I hate to see anyone so young not up to their best self.
Will you call a rheumatologist tomorrow?

This is exactly what happened to me. Coming on 2 years now, but ended up with diagnosis of APS after having PE & DVT (lupus anticoagulant antibody), and after all the testing, linked to Covid/vaccine in my case. I have to be on blood thinner now for life, and just recently was also diagnosed with Sjögren’s syndrome. It has been 1.5 years of chronic pain and trying to find answers. Advocating and researching led me to look past just my hematologist/vascular specialist to get a rheumatologist for testing around the continued pain and symptoms. Will be starting Plaquenil now. @cheart0405, I definitely recommend getting extensive antibody testing.

I hope this encourages you. After a rough bout of Covid last year, it ramped up the inflammation I already had. I knew something was different in my body as I had more pain and fatigue. I am being treated for "borderline" Lupus with Plaquenil now and I am doing better and with less pain. I can do more during the day. I am so grateful. I have fibromyalgia/ostearthritis all over/both thyroid diseases & Raynaud's Syndrome. Praying much...

(lab director). CRP can be elevated for many reasons (its just says there is inflammation present somewhere). But it can be temporary elevated for many reasons and is just a screening test. An ESR is an obsolete test with little value and physicians should not be ordering them anymore. An RBC (red blood cell count) being high doesn’t correlate with anemia (low hemoglobin and ferritin levels). An abnormal RDW (red cell distribution width) means little in this context and is not diagnostic. Make sure you truly are anemic as too much iron is harmful. Are you seeing a rheumatologist? We can easily rule out gout/pseudo gout in 30 minutes in the laboratory. There are many infectious and non-infectious reasons for joint inflammation so get a referral.

There are so many people who have had auto immune diseases since getting either Covid or the Vaccination. All over the world. Check out Dr, John Campbell's channel on youtube. He interviews a few doctors who are trying alternative treatments. Also search other channels for your conditions. The UK, Switzerland, Japan, Germany and other countries are more interested in what is happening with people and have stopped pushing the Vaccination. According to several doctors on youtube they are saying that the spike protein, which it does not matter if it is from Covid or the Vaccination, goes where it is not supposed to and causes all kind of problems as the body does not know what it is and therefore attacks it. Also check out the worldwide group: DIED SUDDENLY on facebook and on Twitter. I have a family member who had multiple vaccinations and got Covid as well and he is a mess.