← Return to MGUS and Curcumin/Tumeric

Discussion

MGUS and Curcumin/Tumeric

Blood Cancers & Disorders | Last Active: Sep 11, 2023 | Replies (60)

Comment receiving replies
@pmm

The mind-body connection is so important. Anxiety can really throw your whole body chemistry for a loop. When I was first diagnosed with MGUS my anxiety escalated, and my white counts actually soared. I felt weak, it impacted my sleep cycles and my appetite. In short, I just felt crummy. Once I talked to my oncologist, I settled down and sat with reality. I realized that I was making myself feel sick by letting my anxiety run willy-nilly
From talking to people I know who have multiple myeloma, and participating in this message board, I have come to believe that it’s all luck-of-the-draw, but I put my faith in the science. Even with a diagnosis of full blown multiple myeloma, the treatment strategies are much more effective than they were even five years ago. Now, trust me, I don’t want my MGUS to advance to multiple myeloma, but if it does, I am prepared to fight the good fight. Chances are, at age 71, I will succumb to something else eventually, but I have a lot of fun stuff to do between now and then.
I am grateful for good treatment strategies and the patients from whom researchers and clinicians learn. I am thankful that my fellow MGUS patients share their journey with me because we learn from one another. I hope your diagnostics are painless and will yield good news. Let us know.
Patty

Jump to this post


Replies to "The mind-body connection is so important. Anxiety can really throw your whole body chemistry for a..."

@pmm
Hi patty,
Thank you for such kind words of wisdom. I am just over one week into my journey and still feel petrified. Struggling with panic attacks. Which I think must be a way of grieving. Still at the testing stage, so I don’t yet have a definite diagnosis of MGUS or smouldering MM. I am neither sure of how I’ve ended up on this site as I live in newzealand! But glad I have.
My biopsy was done this morning, the final bit were they take the bone, I had nerve pain which went straight down my leg. Apparently I said I’m going to pass out. I can’t remember saying it! Wow it was strange feeling passing out! I am fine now and importantly they got what they need.
I will keep you posted.
Sarah