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Vestibular migraine: What symptoms do you experience?
good day members,
Johns Hopkins diagnosed me with vestibular migraine a little over one year ago. Prior to that no one knew what I had and I saw ENTs, neurologists, and many other Dr.s. MRI of close to two years ago shows all is normal. However, despite a respite of feeling almost normal for three months while taking a new medication (Effexor extended release at 75mg.) all of my symptoms came back full force for what I call episodes, at least once a week, and lasting up to three 3 days in bed. My symptoms for the last two years have been: popping ears, nausea, vertigo at the beginning which seems to have gone away and been replaced by dizziness and light headedness, tingling all over head, severe headaches, weakness to almost numbness in my arms, and severe fatigue. I can feel like a pressure in my head at times. I have not lost cognitive functions: that only occurred when I took Topiamate. My internist wants me to see a specialist at the Mayo Clinic, but I wonder if anyone else has experienced what my Hopkins Dr. calls very atypical VM symptoms?
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@cmg Meclizine helps with some, but can make other types of vertigo worse. I have baclofen and low dose steroids for dizziness from neck issues, which I use rarely (and Klonopin to relax muscles, used even more rarely). Zofran for nausea if that is relevant.
But basically, no meds on a regular basis. If I get dizzy I either wait it out or do exercises. You?
I realize your post is a long time ago. Your discription of symptoms are similar to mine. My entire face feels burning. Cool to touch. I have a constant ache and pressure in my head. I have not seen a specialist. Any advice you or anyone else can give us most welcome. Thank you. Matt.
My neurologist has started me on a low dose of anti-depressants. I am not sure it the right thing. She mentioned there are other meds we can try, and it will be a process of elimination to find the right one.
Matt,
I had a ton of imaging done before I was diagnosed with vestibular migraines. It included brain MRI, neck MRI, Ct of inner ears. I think your idea of seeing a specialist is a good one. I would start there.
CMG
Thanks! I wish I could use medical marijuana and then be able to work. I work at a women's imaging center at a local hospital doing mammograms and bone density. Not sure I'd function properly. lol
I may try it on the weekend to see if it helps. I thought it would increase my dizziness. I sure hope I can get back to myself. I will be a patient as I can possibly be!
My concussion was mild as far as I know. I never vomited however didn't know where I was and was talking jibberish for about 20 minutes.
My son built a zipline in his back yard for his 7-year-old. Nana HAD to try it!!! Fell hard!
I have the exact same symptoms and I have gone through the same issues, but no answer. I have done spine rehab etc. Does anyone know the expert in vestibular migraines?
My daughter has seen Otorologist, (ear specialist… ruled out crystals causing vertigo), neurologist and even a neurologist that specialized in eye related neuro disorders to rule that out). She suffers from motion sickness even driving short distance and vertigo about every 2 weeks w light sensitivity. Have tried chiropractor and acupuncture. Recently read that even minor car accident could cause the skull to be pushed off center of the cervical spine, which hers is, so trying physical therapy on the neck especially top discs. She takes all the meds listed by others for nausea, odansetron, motion, meclizine and rizatriptan when vertigo strikes.
She tried antidepresant that caused hallucinations! None of the newer meds to decrease frequency of migraines have worked for her vestibular migraines. I would not let a Dr put you on am anti seizure drug (that’s one option they recommend) as my son is on Depakote and it makes him lethargic and unable to concentrate (young adult). If you have taken recent jab I would definitely look into Dr Malone and dr McCullough for ways to detox and allow your body to heal from the effects of that poison… especially of the symptoms started in the last 3 yrs. Healthy eating and clean water can make a huge difference in allowing your body to heal itself. God bless you and guide you.
frobvt,
Is it against rules here to exchange phone numbers? I really would love to chat. Each day brings new surprises and i am losing faith in my neurologist..
I get it if you are not comfortable
cmg
After 6 months, I feel like I am getting worse. I experience a lot of dizziness and lightheadedness. I also have tingles in my feet.
@cmg you can do a private message and share contact info I believe.