← Return to MGUS and Curcumin/Tumeric

Discussion

MGUS and Curcumin/Tumeric

Blood Cancers & Disorders | Last Active: Sep 11, 2023 | Replies (60)

Comment receiving replies
@cheft

My first biopsy was over a year ago and my affected marrow was 5-7%. We were monitoring labs every 6 months but then on the one year mark they increased so they scheduled again in 3 months. That was in April, that biopsy said my affected marrow was now at 10% which I was then diagnosed with Smoldering Myeloma. This was all done at the Piper Cancer Center in Minneapolis. I was told I’m low risk and 25% chance it will progress to Multiple Myeloma in next 2 years. The message is “watch and wait.
Since April 2023, my wife and I have chosen to get a second opinion at the Mayo in Rochester MN. My first appointment is tomorrow. We were told test etc. will be decided tomorrow at that appointment. I assume labs will be taken but beyond that, we have no idea. We were told to be available all week for whatever needed done. If they schedule a procedure they get you in same day or next day. They don’t mess around. I’ll post updates. My appointment is with Dr. Dingli

Jump to this post


Replies to "My first biopsy was over a year ago and my affected marrow was 5-7%. We were..."

Hey Chef,
Thanks for getting back to me. That’s great they don’t mess around.
I had a CT scan last Friday, which thankfully came back totally clear. Tomorrow I have my 1st bone marrow. I will get the results next month when I see the consultant. My GP has spoken to him regarding bloods etc. so it is possible it is like you smouldering, but a slim chance it’s still at MGUS.
I will be interested to compare my results with yours thank you.
It’s a great idea to get a second opinion.
How have you coped with the constant fear? I feel like a rabbit in the head lights!!!!