1. < Breast Cancer

Taking Tamoxifen long term, between 5-10 years after breast cancer.

Posted by veden66 @veden66, May 8, 2023

Hi. I'm coming up on my 5th year anniversary of being cancer free and taking Tamoxifen. I had invasive ductal carcinoma. Lumpectomy followed by radiation. I had two lymph nodes with isolated tumor cells but tested negative for cancer. I've had zero side affects from taking the medication. I've found a few studies that show there is a long term benefit past the 10 year mark for staying on tamoxifen. I'm interested if people are staying on tamoxifen past the 5 year mark.

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daisy1282022 | @daisy1282022 | May 22, 2023
In reply to @kimmycorvette1 "I didnt take it. I refused pills, chemo, radiation and glad I did. I just had..." + (show)
@kimmycorvette1

I didnt take it. I refused pills, chemo, radiation and glad I did. I just had surgery. My tumor was very big- 94 mm.

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Hi, I wondered how long has it been your surgery and what kind of BC? Thanks. Daisy

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1 reply
kimmycorvette1 | @kimmycorvette1 | May 22, 2023
In reply to @daisy1282022 "Hi, I wondered how long has it been your surgery and what kind of BC? Thanks...." + (show)
@daisy1282022

Hi, I wondered how long has it been your surgery and what kind of BC? Thanks. Daisy

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Been 5 yrs. Duct something! They said it was Stage 0, but I dont know how it was only Stage 0 being size of a grapefruit!

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1 reply
svb | @svb | May 23, 2023
In reply to @kimmycorvette1 "Been 5 yrs. Duct something! They said it was Stage 0, but I dont know how..." + (show)
@kimmycorvette1

Been 5 yrs. Duct something! They said it was Stage 0, but I dont know how it was only Stage 0 being size of a grapefruit!

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Was it DCIS- ductal carcinoma in situ? That is the type of cancer I had. My oncologist said it is considered stage 0 if all the cancer is contained in the milk ducts.

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1 reply
daisy1282022 | @daisy1282022 | May 23, 2023

Dear Kim, Thanks for your reply. I had DCIS 0.8cm, and had surgery last November. with two dimensions less than 2mm😢. I refused radiation, but was convinced by oncologist to take Tamoxifen since March 21. I am thinking to quit Tamoxifen any time now. I believe that my life quality is more important. Wish you the best. Daisy.

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1 reply
kimmycorvette1 | @kimmycorvette1 | May 23, 2023
In reply to @svb "Was it DCIS- ductal carcinoma in situ? That is the type of cancer I had. My..." + (show)
@svb

Was it DCIS- ductal carcinoma in situ? That is the type of cancer I had. My oncologist said it is considered stage 0 if all the cancer is contained in the milk ducts.

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Yes thats what is was. Plus it was in lobes too.

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kimmycorvette1 | @kimmycorvette1 | May 23, 2023
In reply to @daisy1282022 "Dear Kim, Thanks for your reply. I had DCIS 0.8cm, and had surgery last November. with..." + (show)
@daisy1282022

Dear Kim, Thanks for your reply. I had DCIS 0.8cm, and had surgery last November. with two dimensions less than 2mm😢. I refused radiation, but was convinced by oncologist to take Tamoxifen since March 21. I am thinking to quit Tamoxifen any time now. I believe that my life quality is more important. Wish you the best. Daisy.

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Yes 🙂

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Rom828 | @jgallagher04921 | May 29, 2023

I am at the stage where I need to get a monthly injection to stop my ovaries for 5 years and need to decide if I want to be on Tamoxifen for 10 years or an aromatase inhibitor for 5 years. Anyone have any advice on which medicine would have less side effects?

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